Pancreatic Cancer Support Group

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Comments (1,170)

Acinar cell carcinoma does not secrete CA19-9 so this biomarker is not usable to monitor chemotherapy...

https://connect.mayoclinic.org/comment/1378671/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Aug 25 4:58am

Thank you! Nothing of consequence on recent scans; though still waiting for my IR doc who...

https://connect.mayoclinic.org/comment/1387161/

Discussion: Histotripsy: My experience

Support Group: Pancreatic Cancer

Posted: Sep 5 8:32am

was diagnosed with adenocarcinoma of the tail and body of the pancreas with a lung metastasis...

https://connect.mayoclinic.org/comment/1382379/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Aug 30 2:50am

Hi there gamaryanne! How is Naliri working on the lesion? I wish you the best news...

https://connect.mayoclinic.org/comment/1348629/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 15 9:01am

I'm very glad to hear your effects from Naliri are minimal. Is it lowering your ca19-9....

https://connect.mayoclinic.org/comment/1332489/

Discussion: Anyone familiar with the clinical trial RMC-6236? Or how to enroll?

Support Group: Pancreatic Cancer

Posted: Jun 22 8:44am

Since your CA19 levels are low, I was wondering if you have acinar cell pancreatic cancer...

https://connect.mayoclinic.org/comment/1344481/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 9 12:42pm

I just started that chemo. Does it control your Cancer ? What is your CA19-9 now...

https://connect.mayoclinic.org/comment/1335921/

Discussion: Best Pancreatic Cancer Chemo

Support Group: Pancreatic Cancer

Posted: Jun 26 6:19pm

Oh my gosh this is such good news @mnewland99 ! Maybe we shouldn’t be getting our...

https://connect.mayoclinic.org/comment/1366920/

Discussion: Histotripsy: My experience

Support Group: Pancreatic Cancer

Posted: Aug 9 10:22am

@suelannon Same story for my husband, Surgeon said he got it all and surgery was curative....

https://connect.mayoclinic.org/comment/1370146/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Aug 13 9:03pm

My Ca19-9 levels have bounced around between 138 at beginning of gem-brax to 30, to 85...

https://connect.mayoclinic.org/comment/1356868/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Jul 26 10:43am

No, getting histotripsy doesnt depend on previous treatments, as I have had a lot of different...

https://connect.mayoclinic.org/comment/1367435/

Discussion: Histotripsy: My experience

Support Group: Pancreatic Cancer

Posted: Aug 10 5:47am

Thank you very helpful. I had Whipple in Feb.2024 with a ca19-9 of 1045.After surgery it...

https://connect.mayoclinic.org/comment/1333359/

Discussion: New Pancreatic Cancer Diagnosis

Support Group: Pancreatic Cancer

Posted: Jun 23 9:48am

After Naliri, with a patient that is ECOG 0-1, do you try different combinations of the...

https://connect.mayoclinic.org/comment/1356660/

Discussion: Pancreatic Cancer Surgery Q&A July 21-25 w/ Dr. Poruk, Mayo Clinic

Support Group: Pancreatic Cancer

Posted: Jul 26 7:47am

My husband had the same surgery as you did in Dec 2023 - clear margins and...

https://connect.mayoclinic.org/comment/1339988/

Discussion: Para-aorta lymph node positive for carcinoma cells

Support Group: Pancreatic Cancer

Posted: Jul 2 6:46pm

@mnewland99 SBRT apparently cleared my lung nodule then on to Naliri in March. I am due...

https://connect.mayoclinic.org/comment/1352176/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 20 7:56am

@bradthompson88 , @wpprescott would not be able to do any other SOC cancer treatment simultaneously with...

https://connect.mayoclinic.org/comment/1343426/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 7 10:22pm

Only because when you read up on SMAD4 it says it's resistant to chemo and radiation....

https://connect.mayoclinic.org/comment/1368866/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Aug 12 8:10am

I’m 5 years passed my whipped surgery and have been having regular blood tests and ct...

https://connect.mayoclinic.org/comment/1356340/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Jul 25 4:07pm

From what my oncologist told me, acinar cell pancreatic cancer tends to not raise ca19-9 levels....

https://connect.mayoclinic.org/comment/1371975/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Aug 16 12:32pm

I was rereading your post from a one month ago, and I realized you made a...

https://connect.mayoclinic.org/comment/1371712/

Discussion: How fast does adenocarcinoma grow??

Support Group: Pancreatic Cancer

Posted: Aug 16 7:57am

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