Pancreatic Cancer Support Group

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Comments (656)

I found Creon did not increase my chronic constipation. Even though I had gas and oily...

https://connect.mayoclinic.org/comment/907121/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 3, 2023

In response to what others are doing regarding the taking of pancrealipase products such as Creon,...

https://connect.mayoclinic.org/comment/813888/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2023

There are patient assistance programs for the Rx brands of pancrealipase. They are all close in...

https://connect.mayoclinic.org/comment/806355/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 4, 2023

I have been housebound a bit, having to eat and wait an hour before I go...

https://connect.mayoclinic.org/comment/878691/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

I underwent chemo before my unsuccessful whipple and lost my appetite and went from 145 to...

https://connect.mayoclinic.org/comment/866842/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 26, 2023

Yep... :( The dreaded Triple-O: Orange, Oily, and Odoriferous. With most meals, 3 of my 36000-unit...

https://connect.mayoclinic.org/comment/935656/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 24, 2023

My Dad had the Whipple for his NET in October2021. He was doing well, although weight...

https://connect.mayoclinic.org/comment/710846/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2022

it's been almost 2 years since my whipple, and am still trying to figure it out....

https://connect.mayoclinic.org/comment/291993/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 7, 2020

I am now 63 years old. I had a well differentiated, grade 1, stage 1 gastrinoma...

https://connect.mayoclinic.org/comment/826346/

Discussion: Dad at 61, discovered to have 2cm localized at the head of pancreas

Support Group: Pancreatic Cancer

Posted: Mar 15, 2023

https://connect.mayoclinic.org/comment/794153/

Discussion: Feet edema

Support Group: Pancreatic Cancer

Posted: Jan 8, 2023

Hi Teresa, I did read the post by @elm60 and I had not heard of Enterade....

https://connect.mayoclinic.org/comment/711168/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2022

There are five Rx pancrealipase brands sold in the US- Creon, Zenpep, Viokace, Pertzye and Pancreaze....

https://connect.mayoclinic.org/comment/931755/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 18, 2023

What unit of Creon are you taking? I see they have 3k, 6k, 12k, 24k (what...

https://connect.mayoclinic.org/comment/1100349/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 6, 2024

It really is a crap shoot. At first I took Creon and it hit me like...

https://connect.mayoclinic.org/comment/878484/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

@howleegirl , If you feel like you've got his dose of five 6000-unit capsules (30000 units...

https://connect.mayoclinic.org/comment/860961/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

Philv On weight loss not much. Ive talked with a few nutritionists but they really werent...

https://connect.mayoclinic.org/comment/767464/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 30, 2022

@hopeful33250 I had Whipple done 4 months ago. Lost 30lbs. Diarrhea, very weak, even can’t get...

https://connect.mayoclinic.org/comment/1486038/

Discussion: Losing weight after Whipple surgery: Why? Any advice?

Support Group: Pancreatic Cancer

Posted: Jan 18 7:55pm

I had my whipple in April 2022. I had infections after my surgery as well. Had...

https://connect.mayoclinic.org/comment/1254080/

Discussion: Sepsis occurrences following whipple

Support Group: Pancreatic Cancer

Posted: Mar 9, 2025

What is Zenpep like I just had a blood test and my liver is high and...

https://connect.mayoclinic.org/comment/1125276/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 17, 2024

Best wishes for a successful Whipple surgery! Mine was laparoscopic/robotic and it was two years ago....

https://connect.mayoclinic.org/comment/1100296/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 6, 2024

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