Pancreatic Cancer Support Group

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Comments (866)

During the 24 months of Folfirinox treatment, I walked between 3-5 miles. I worked all through...

https://connect.mayoclinic.org/comment/1062949/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6 1:15am

My sister met the same fate. She was diagnosed Stage 4 pancreatic cancer at the Mayo...

https://connect.mayoclinic.org/comment/1144686/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 20 3:39pm

I had terrible nausea after my first folfirinox infusion. Lost 10 lbs in 10 days. My...

https://connect.mayoclinic.org/comment/887040/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 29, 2023

There are too many variables for a quick yes or no answer. Stage of cancer is...

https://connect.mayoclinic.org/comment/939147/

Discussion: New patient: Can pancreatic cancer be treated??

Support Group: Pancreatic Cancer

Posted: Sep 30, 2023

Thanks for your very detailed and helpful reply. The newer formulation is better tolerated as I...

https://connect.mayoclinic.org/comment/1016311/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 15 1:47pm

I did 3 rounds of Folfirinox with poor response (CA19 increased from 174 to 440). Switched...

https://connect.mayoclinic.org/comment/1090336/

Discussion: Can radiation be given between finishing chemo and having Whipple?

Support Group: Pancreatic Cancer

Posted: Jun 20 9:14am

My wife is also small and lost weight rapidly after surgery. She couldn't tolerate any of...

https://connect.mayoclinic.org/comment/717762/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 15, 2022

My significant other recently ( Feb 7) started Gemza/nab-paclitaxel (second line) after having completing 24 cycles...

https://connect.mayoclinic.org/comment/809274/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Feb 10, 2023

I’m so happy to hear that you are on Folfirinox. My oncologist tells me it’s the...

https://connect.mayoclinic.org/comment/947798/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 14, 2023

I hadn't heard of that medication, so I googled it. The brand name is Onivyde, and...

https://connect.mayoclinic.org/comment/954888/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 27, 2023

My husband, age 69 had some back pain about 1.5 years ago. Mentioned it to the...

https://connect.mayoclinic.org/comment/1052114/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 17 12:30am

Greetings mjennison: Sorry to hear about your husband's diagnosis... but it's good news that he is...

https://connect.mayoclinic.org/comment/754759/

Discussion: Pancreatic Cancer - No signs of spread, Whipple Candidate

Support Group: Pancreatic Cancer

Posted: Sep 28, 2022

Hello friends. It's been a while since I posted. Have been dealing with confusing medical issues....

https://connect.mayoclinic.org/comment/939152/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Sep 30, 2023

mbcfl - For what it's worth.... Similar to you, I was recently (May 2023) diagnosed with...

https://connect.mayoclinic.org/comment/955739/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

Scan is key. My CA19-9 was 192 before surgery on February 9, 2024, I was resectable...

https://connect.mayoclinic.org/comment/1174320/

Discussion: Another CA-19 post...

Support Group: Pancreatic Cancer

Posted: 2 days ago

I advocated for aggressive chemotherapy of Folfirinox. This was the formulation used from 2011-2018…not the (m)Folfirinox...

https://connect.mayoclinic.org/comment/882727/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 21, 2023

My husband had ⅔ of his pancreas (the tail end) removed about 10 months ago. The...

https://connect.mayoclinic.org/comment/1163267/

Discussion: Has anyone been able to have surgery for tumor in the tail?

Support Group: Pancreatic Cancer

Posted: Oct 27 4:44am

Your Mother is definitely a fighter and survivor in what she has gone through. During my...

https://connect.mayoclinic.org/comment/824399/

Discussion: Advice needed about my Mom

Support Group: Pancreatic Cancer

Posted: Mar 11, 2023

My last CT scan in early Sept. of '23 showed the tumor on my pancreas. Size...

https://connect.mayoclinic.org/comment/1151477/

Discussion: Anyone with BRCA 2 mutation taking Olaparib?

Support Group: Pancreatic Cancer

Posted: Oct 3 7:41pm

Hello Colleen. Yes, 1st chemo was 4/22, Folfirinox. Was vomiting by 6 that evening, and into...

https://connect.mayoclinic.org/comment/257709/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 30, 2019

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