Pancreatic Cancer Support Group

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Comments (897)

Thank you for sharing your very helpful knowledge! We actually went for a "virtual" second opinion...

https://connect.mayoclinic.org/comment/1138403/

Discussion: Which hospital of excellence?

Support Group: Pancreatic Cancer

Posted: Sep 8 12:55pm

Ashley2235, I believe gamaryanne stated at one time (at least) that it’s the trend. Is there...

https://connect.mayoclinic.org/comment/1142458/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 16 12:31pm

Were you only tested for a germline (inherited mutation)? Some testing of a somatic (not necessarily...

https://connect.mayoclinic.org/comment/1143452/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 18 10:23am

Yes, agreed. With sine mutations CA19-9 is a very good indicator of cancer spread. I have...

https://connect.mayoclinic.org/comment/1142249/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 16 6:29am

Hello lovemymom77, Glad you found this thread. You will receive excellent responses from those with a...

https://connect.mayoclinic.org/comment/1143379/

Discussion: What are we looking at?

Support Group: Pancreatic Cancer

Posted: Sep 18 8:37am

@199,Thank you so much for the quick reply! I’ve been back to back chemo since last...

https://connect.mayoclinic.org/comment/1130005/

Discussion: No treatment or surgery?

Support Group: Pancreatic Cancer

Posted: Aug 24 3:54pm

My husband did the 12 rounds folfirinox, then a maintenance for 4 months without the oxy...

https://connect.mayoclinic.org/comment/1153424/

Discussion: Nanoknife for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Oct 7 9:39am

Unfortunately I don't have any mutations. How much time passed between your increasing CA19 for metastasis?...

https://connect.mayoclinic.org/comment/1143390/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 18 8:59am

Dittos! I have a spreadsheet where I have recorded my CA19-9 since diagnosis. (11/2021) For me,...

https://connect.mayoclinic.org/comment/1142385/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 16 10:03am

A few things, get a CA19-9 blood test if you haven't already, it is the marker...

https://connect.mayoclinic.org/comment/1133736/

Discussion: Indeterminate MRI Findings - Terrified.

Support Group: Pancreatic Cancer

Posted: Aug 31 7:12am

good advice as always and a remarkable path to get where you are today. after 7/22/24...

https://connect.mayoclinic.org/comment/1143750/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 19 12:59am

I am in the 3rd cycle of Trial drugs RM9805 and RM6236. Since July 8 it...

https://connect.mayoclinic.org/comment/1136497/

Discussion: Anyone been on Pancreatic Cancer Clinical Trials that helped?

Support Group: Pancreatic Cancer

Posted: Sep 5 7:36am

199, thank you for your response and the years of nursing you gave. It’s not an...

https://connect.mayoclinic.org/comment/1131550/

Discussion: Treatment for metastasis to the lungs?

Support Group: Pancreatic Cancer

Posted: Aug 27 7:50am

Yes. I ditto what all have said. Resistance to drugs happens differently for all of us...

https://connect.mayoclinic.org/comment/1129773/

Discussion: CA19-9 rise while on maintenance chemo

Support Group: Pancreatic Cancer

Posted: Aug 24 9:35am

Yes cisplatin. I was getting all 3 up until last week. @gamaryanne wrote recently that cisplatin...

https://connect.mayoclinic.org/comment/1152817/

Discussion: Nanoknife for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Oct 6 9:06am

I'm afraid I am not the person to interpret reports. However, one thing that in hindsight...

https://connect.mayoclinic.org/comment/1155066/

Discussion: Need help on this biopsy report and advice.

Support Group: Pancreatic Cancer

Posted: Oct 10 5:55pm

Hi, I was diagnosed with stage 2 pancreatic cancer in December 2023. Had clinical trial immunotherapy...

https://connect.mayoclinic.org/comment/1154789/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 10 7:36am

Based on the time and the portable pump, your wife is on the (m)Folfirinox regimen which...

https://connect.mayoclinic.org/comment/1158749/

Discussion: Help: Struggling with Wife's Pancreatic Cancer issues

Support Group: Pancreatic Cancer

Posted: Oct 18 4:09am

I had a ca19-9 blood test. It had gone up 700 in 6 weeks. They found...

https://connect.mayoclinic.org/comment/734547/

Discussion: Need advice: Stage 2 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Aug 6, 2022

Here is a YouTube video on how CA19-9 is used in measuring treatment effectiveness. It is...

https://connect.mayoclinic.org/comment/732667/

Discussion: Need advice: Stage 2 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 31, 2022

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