Pancreatic Cancer Support Group

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Comments (1,030)

You might want to check if your chemo infusion center offers cold therapy during chemo. If...

https://connect.mayoclinic.org/comment/1328954/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 17 8:39am

Long story short: I did 6 months (12 rounds) of Folfirinox before Whipple for PDAC. No...

https://connect.mayoclinic.org/comment/927882/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Sep 10, 2023

Regarding surgery, you could inquire with Dr. Christopher Wolfgang at NYU/Langone (Perlmutter Cancer Center) about treating...

https://connect.mayoclinic.org/comment/1266003/

Discussion: Any successful experiences with GemAbrax after awful side effects?

Support Group: Pancreatic Cancer

Posted: Mar 24 4:43pm

@stevm, I've now had 17 daily (M-F) treatments of radiation + capecitabine, with 11 more to...

https://connect.mayoclinic.org/comment/985750/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Dec 23, 2023

The original article link says: 1) FOLFIRINOX is composed of 5-FU, leucovorin, irinotecan and oxaliplatin. 2)...

https://connect.mayoclinic.org/comment/1015917/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 14, 2024

When I was on Folfirinox with Oxaliplatin, anything cold was intolerable, even touching metal. Cold (below...

https://connect.mayoclinic.org/comment/788640/

Discussion: Diarrhea tips?

Support Group: Pancreatic Cancer

Posted: Dec 25, 2022

From my diagnosis in 8/2024 I have known the key to long term survival is training...

https://connect.mayoclinic.org/comment/1176582/

Discussion: Anyone have experience with immunotherapy clinical trials?

Support Group: Pancreatic Cancer

Posted: Nov 20, 2024

Hi there, my husband is also stage IV and in Folfirinox. After 4 rounds they did...

https://connect.mayoclinic.org/comment/989395/

Discussion: How important is rising Ca19-9 if CT is stable re: having surgery?

Support Group: Pancreatic Cancer

Posted: Dec 31, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856182/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 8, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856178/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: May 8, 2023

Thank you. My husband also had treatment with Folfirinox. It worked for about 8 months until...

https://connect.mayoclinic.org/comment/826517/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 15, 2023

I am so sorry to hear you’re dealing with chronic diarrhea. That can be so disruptive....

https://connect.mayoclinic.org/comment/1242174/

Discussion: Is CA 19-9 a lagging indicator? How is it used?

Support Group: Pancreatic Cancer

Posted: Feb 21 10:37am

Hi, I am reading alot of posts lately and wanted to write in and see if...

https://connect.mayoclinic.org/comment/957133/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 31, 2023

@kslayer , FWIW, I just typed out a much longer reply which has to be approved...

https://connect.mayoclinic.org/comment/993217/

Discussion: Nausea when eating during Folfirinox Adjuvant Chemotherapy

Support Group: Pancreatic Cancer

Posted: Jan 7, 2024

Hi - I’m on Folfirinox regime. I am around my immediate family and stay away from...

https://connect.mayoclinic.org/comment/793960/

Discussion: Immune system after Folfirinox: What precautions are necessary?

Support Group: Pancreatic Cancer

Posted: Jan 8, 2023

Hi @katiegrace - My sister is having the same issue (on Folfirinox, Stage IV, major shrinkage...

https://connect.mayoclinic.org/comment/998880/

Discussion: Nausea when eating during Folfirinox Adjuvant Chemotherapy

Support Group: Pancreatic Cancer

Posted: Jan 17, 2024

Good Luck. I have had 9 FOLFIRINOX and the Whipple. Scheduling additional chemo this week. I...

https://connect.mayoclinic.org/comment/863232/

Discussion: First chemo tomorrow--tips, suggestions, cautions?

Support Group: Pancreatic Cancer

Posted: May 20, 2023

My husband went through Folfirinox at MSK. I learned so much through this forum, and I...

https://connect.mayoclinic.org/comment/1260883/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Mar 18 7:38am

I had 12 rounds of Folfirinox chemo before Whipple surgery, and have had 30 biweekly rounds...

https://connect.mayoclinic.org/comment/1041892/

Discussion: Anyone have experience with liver lesions from pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 28, 2024

Thank you for all the info. MSK felt the new spot on my liver is too...

https://connect.mayoclinic.org/comment/953960/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 26, 2023

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