Pancreatic Cancer Support Group

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Comments (514)

On my CT scans the pancreas was atrophic and has continued to be. Creon seems to...

https://connect.mayoclinic.org/comment/985095/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Dec 22, 2023

All, my husband had the Whipple in April 2020 and immediately gained back 20 of the...

https://connect.mayoclinic.org/comment/326768/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 11, 2021

Hello @mohammed01 and welcome to Mayo Connect. I can understand your concern about your father's continued...

https://connect.mayoclinic.org/comment/1173844/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 15, 2024

Good to have "company" in other folks dealing with pancreatic CA. I started this journey The...

https://connect.mayoclinic.org/comment/257722/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 17, 2019

Thank you for your reply. After the attending the EATING & NUTRITION w/PANCREATIC CANCER seminar, I...

https://connect.mayoclinic.org/comment/966310/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 17, 2023

My distal/spleenectomy was in December. I had no chronic concerns coming into it except my liver...

https://connect.mayoclinic.org/comment/850713/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

Hi, was diagnosed PCan IV with mestatsis to liver 10/19/22. Just completed 2nd round of chemo....

https://connect.mayoclinic.org/comment/780621/

Discussion: Radioembolization for pancreatic cancer metastasis to liver?

Support Group: Pancreatic Cancer

Posted: Dec 3, 2022

I take 5x25 Creons with meals, 3x25 with snacks although I do not usually eat snacks....

https://connect.mayoclinic.org/comment/1100368/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 6, 2024

She was taking Creon. Started taking around her 8th folfironox cycle (she had 9 total) then...

https://connect.mayoclinic.org/comment/208586/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

My husband qualified for the Creon assistance program from Abbvie. I didn't think we'd qualify until...

https://connect.mayoclinic.org/comment/989713/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jan 1, 2024

Thank you all for your comments. I’ve been on creon 3600 for two weeks and after...

https://connect.mayoclinic.org/comment/969580/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Nov 23, 2023

Aceman66, I had my whipple on july12 and it has been a miserable time. Everyone has...

https://connect.mayoclinic.org/comment/911695/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2023

Marvin, thanks for the comeback! Formerly, my husband was a big carb/sugar eater, so he is...

https://connect.mayoclinic.org/comment/257704/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 12, 2019

Robert - Creon (36,000 Unit capsules) also are hard to find in my part of southcentral...

https://connect.mayoclinic.org/comment/938989/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Sep 29, 2023

Hi @joanalc, how is your husband doing? Has he started to gain weight? In addition to...

https://connect.mayoclinic.org/comment/846417/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Apr 20, 2023

It took a few months to recover from the surgery and then I had 6 months...

https://connect.mayoclinic.org/comment/826468/

Discussion: Dad at 61, discovered to have 2cm localized at the head of pancreas

Support Group: Pancreatic Cancer

Posted: Mar 15, 2023

I found Creon did not increase my chronic constipation. Even though I had gas and oily...

https://connect.mayoclinic.org/comment/907121/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 3, 2023

In response to what others are doing regarding the taking of pancrealipase products such as Creon,...

https://connect.mayoclinic.org/comment/813888/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2023

There are patient assistance programs for the Rx brands of pancrealipase. They are all close in...

https://connect.mayoclinic.org/comment/806355/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 4, 2023

I have been eating nut butters at the suggestion of the hepatobiliary dietician at MSKCC to...

https://connect.mayoclinic.org/comment/1123879/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 14, 2024

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