Pancreatic Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

497 total results

Comments (457)

My distal/spleenectomy was in December. I had no chronic concerns coming into it except my liver...

https://connect.mayoclinic.org/comment/850713/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

Thank you for your reply. After the attending the EATING & NUTRITION w/PANCREATIC CANCER seminar, I...

https://connect.mayoclinic.org/comment/966310/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 17, 2023

Marvin, thanks for the comeback! Formerly, my husband was a big carb/sugar eater, so he is...

https://connect.mayoclinic.org/comment/257704/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 12, 2019

Aceman66, I had my whipple on july12 and it has been a miserable time. Everyone has...

https://connect.mayoclinic.org/comment/911695/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2023

Thank you all for your comments. I’ve been on creon 3600 for two weeks and after...

https://connect.mayoclinic.org/comment/969580/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Nov 23, 2023

I have been eating nut butters at the suggestion of the hepatobiliary dietician at MSKCC to...

https://connect.mayoclinic.org/comment/1123879/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 14 10:29pm

Hi Teresa, I did read the post by @elm60 and I had not heard of Enterade....

https://connect.mayoclinic.org/comment/711168/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2022

I am now 63 years old. I had a well differentiated, grade 1, stage 1 gastrinoma...

https://connect.mayoclinic.org/comment/826346/

Discussion: Dad at 61, discovered to have 2cm localized at the head of pancreas

Support Group: Pancreatic Cancer

Posted: Mar 15, 2023

My team suggested high calorie versions of almost everything to help gain weight - full cream...

https://connect.mayoclinic.org/comment/794153/

Discussion: Feet edema

Support Group: Pancreatic Cancer

Posted: Jan 8, 2023

It took a few months to recover from the surgery and then I had 6 months...

https://connect.mayoclinic.org/comment/826468/

Discussion: Dad at 61, discovered to have 2cm localized at the head of pancreas

Support Group: Pancreatic Cancer

Posted: Mar 15, 2023

Hi @joanalc, how is your husband doing? Has he started to gain weight? In addition to...

https://connect.mayoclinic.org/comment/846417/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Apr 20, 2023

Robert - Creon (36,000 Unit capsules) also are hard to find in my part of southcentral...

https://connect.mayoclinic.org/comment/938989/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Sep 29, 2023

In response to what others are doing regarding the taking of pancrealipase products such as Creon,...

https://connect.mayoclinic.org/comment/813888/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2023

There are patient assistance programs for the Rx brands of pancrealipase. They are all close in...

https://connect.mayoclinic.org/comment/806355/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 4, 2023

I found Creon did not increase my chronic constipation. Even though I had gas and oily...

https://connect.mayoclinic.org/comment/907121/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 3, 2023

Hello @kay2 , my wife is in a similar situation. She had a distal pancreatectomy in...

https://connect.mayoclinic.org/comment/326761/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Nov 6, 2020

I underwent chemo before my unsuccessful whipple and lost my appetite and went from 145 to...

https://connect.mayoclinic.org/comment/866842/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 26, 2023

I have been housebound a bit, having to eat and wait an hour before I go...

https://connect.mayoclinic.org/comment/878691/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

it's been almost 2 years since my whipple, and am still trying to figure it out....

https://connect.mayoclinic.org/comment/291993/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 7, 2020

Yep... :( The dreaded Triple-O: Orange, Oily, and Odoriferous. With most meals, 3 of my 36000-unit...

https://connect.mayoclinic.org/comment/935656/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 24, 2023