Pancreatic Cancer Support Group

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Comments (549)

I finally feel that my gut is not ruling my life since I got up to...

https://connect.mayoclinic.org/comment/871929/

Discussion: If you had Whipple surgery, what are you eating or not eating?

Support Group: Pancreatic Cancer

Posted: Jun 3, 2023

I haven't tried lifting the head of the bed but I think that's a good idea....

https://connect.mayoclinic.org/comment/1033630/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 14, 2024

Hi I am 11 months post Whipple for pancreatic Ca. I have spoken to my gastroenterologist...

https://connect.mayoclinic.org/comment/831253/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Mar 24, 2023

There is an on-line dosing calculator that makes it easier to determine the required amount of...

https://connect.mayoclinic.org/comment/1124162/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 15, 2024

I ate a lot of mashed potatoes after my Whipple, but had to reduce the butter...

https://connect.mayoclinic.org/comment/936698/

Discussion: What to eat when diagnosed with pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Sep 26, 2023

I experienced cramps in calves and well before I was ever prescribed Creon. One manifestation is...

https://connect.mayoclinic.org/comment/928222/

Discussion: Can Creon be the cause of headaches and leg cramps?

Support Group: Pancreatic Cancer

Posted: Sep 11, 2023

AMAZING price difference between CVS mail order and CVS retail price for Creon pancreatic enzyme supplement...

https://connect.mayoclinic.org/comment/915126/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 18, 2023

My husband celebrated his one year Whipple surgery in February. He had a “rarest of rare...

https://connect.mayoclinic.org/comment/257698/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 11, 2019

Creon should not give you any side effects. My husband takes 3x150mg with each meal. He...

https://connect.mayoclinic.org/comment/1244210/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 5:36am

I did take Creon, up to 3*4 per meal but as I improved, I find that...

https://connect.mayoclinic.org/comment/667454/

Discussion: Post Whipple: how long before your stomach "woke up"?

Support Group: Pancreatic Cancer

Posted: Jan 3, 2022

The cost for Creon is the highest single medication bill we pay since my husband's total...

https://connect.mayoclinic.org/comment/1091695/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Jun 22, 2024

After I had Whipple surgery in 2019 the dietician suggested adding coconut to food for extra...

https://connect.mayoclinic.org/comment/988417/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2023

You might not be taking enough believe it or not. I’m taking 120 000IU zenpep (that’s...

https://connect.mayoclinic.org/comment/1177177/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Nov 20, 2024

Just my experience - (after losing 40 pounds) I've been taking enzymes with every meal for...

https://connect.mayoclinic.org/comment/995297/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 10, 2024

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856182/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 8, 2023

@crickard70, I hope you saw the helpful posts from @frances007 @gardenlady1116 @ajh5285. It can be challenging...

https://connect.mayoclinic.org/comment/836488/

Discussion: Problems with Dehydration: What do you do to keep hydrated?

Support Group: Pancreatic Cancer

Posted: Apr 2, 2023

Hi @randyokey, there are several discussions about eating with pancreatic cancer. Here are a few you...

https://connect.mayoclinic.org/comment/998662/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 16, 2024

I appreciate the update, @cazms5. I'm glad to hear that your husband was able to get...

https://connect.mayoclinic.org/comment/997380/

Discussion: Difficult Diagnosis

Support Group: Pancreatic Cancer

Posted: Jan 14, 2024

I am struggling with the same thing. I am around 100 and want to be at...

https://connect.mayoclinic.org/comment/871078/

Discussion: If you had Whipple surgery, what are you eating or not eating?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

I took Creon and, when it became very difficult to obtain, switched to Zenpep. I was...

https://connect.mayoclinic.org/comment/1244439/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 9:53am

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