Pancreatic Cancer Support Group

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Comments (677)

Lots of helpful new discoveries are happening to increase the understanding of why pancreatic cancer is...

https://connect.mayoclinic.org/comment/1107193/

Discussion: Clinical Trials: they are not designed only to be a “last resort”

Support Group: Pancreatic Cancer

Posted: Jul 17, 2024

Continued reply; forum apparently wants smaller pieces... Regarding clinical trials: It can be a frustrating experience...

https://connect.mayoclinic.org/comment/967222/

Discussion: Switch from Folfirinox to Gem/Abrax due to non response

Support Group: Pancreatic Cancer

Posted: Nov 18, 2023

@katiegrace , My CA19-9 was at 677 when I began chemo (Gem+Abrax+Cisplatin) for the post-Whipple recurrence....

https://connect.mayoclinic.org/comment/952124/

Discussion: Began folfirinox treatment - have a few questions

Support Group: Pancreatic Cancer

Posted: Oct 22, 2023

That is an absolutely wonderful response and another reason (in addition to your BRCA2-positive status mentioned...

https://connect.mayoclinic.org/comment/1076658/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: May 28, 2024

mayoconnectuser1, “Don’t be lulled into sense of being cancer free” is terrific advice and one if...

https://connect.mayoclinic.org/comment/1026609/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 3, 2024

Nalirifox was approved by the FDA last year. It's basically a reformulation of Folfirinox using a...

https://connect.mayoclinic.org/comment/1246176/

Discussion: What's next?

Support Group: Pancreatic Cancer

Posted: Feb 26 6:57pm

A side branch IPMN commonly abbreviated BD-IPMN for branch duct tend to be the benign form...

https://connect.mayoclinic.org/comment/726292/

Discussion: MRI MRCP - Cyst (IPMN) - Newbie

Support Group: Pancreatic Cancer

Posted: Jul 13, 2022

^Indeed on the PARP inhibitors (PARPIs).^ My Guardant test, which reported both ATM Q268 and a...

https://connect.mayoclinic.org/comment/1042283/

Discussion: New biomarker Claudin 18.2

Support Group: Pancreatic Cancer

Posted: Mar 29, 2024

@stageivsurvivor , THANK YOU for posting that link to Gould's paper. It's a goldmine full of...

https://connect.mayoclinic.org/comment/876630/

Discussion: Struggling with my MD's style

Support Group: Pancreatic Cancer

Posted: Jun 11, 2023

Dear sadiegrace, I love the tone of humility and grace in your response! You are very...

https://connect.mayoclinic.org/comment/992490/

Discussion: Pancreatic cancer recurrence: Anyone else?

Support Group: Pancreatic Cancer

Posted: Jan 6, 2024

Yes, I am very familiar with this trial. RMC-6236 is a unique drug compound designed to...

https://connect.mayoclinic.org/comment/1038202/

Discussion: Anyone familiar with the clinical trial RMC-6236? Or how to enroll?

Support Group: Pancreatic Cancer

Posted: Mar 22, 2024

Coming from a career in clinical research that included cancer, I too assumed 12 cycles was...

https://connect.mayoclinic.org/comment/1171286/

Discussion: Can we get cancer insurance after diagnosis?

Support Group: Pancreatic Cancer

Posted: Nov 10, 2024

Everyone is different, but we have hope things are moving for the better as medical options...

https://connect.mayoclinic.org/comment/911770/

Discussion: Stage 4 pancreatic cancer progression: Don't know what to expect

Support Group: Pancreatic Cancer

Posted: Aug 12, 2023

June 18 will mark 13 years survival from when I got my diagnosis. The BRCA1 gene...

https://connect.mayoclinic.org/comment/1311136/

Discussion: 45 Y old husband got diagnosed with stage 4 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 23 11:45am

Thank you so much for sharing your experience. We had not heard about Enterade, so I...

https://connect.mayoclinic.org/comment/733241/

Discussion: How can I help my husband face the possibility he may not survive?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2022

I am also stage IV and was diagnosed almost 2 yrs ago. I went 22 treatments...

https://connect.mayoclinic.org/comment/1015971/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 15, 2024

thank you SOOO much for this information...we're getting his care at University of Virginia which is...

https://connect.mayoclinic.org/comment/910464/

Discussion: New, overwhelmed: What's microsatellite stable?

Support Group: Pancreatic Cancer

Posted: Aug 10, 2023

Did they do a biopsy on the liver spots, or only the pancreas? What was my...

https://connect.mayoclinic.org/comment/968827/

Discussion: Newly diagnosed with pancreatic mass — What questions to ask?

Support Group: Pancreatic Cancer

Posted: Nov 21, 2023

@gamaryanne , congrats on that progress. I would be far out of my lane if I...

https://connect.mayoclinic.org/comment/852830/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

To ajh== Though I am the caregiver, (my husband has the cancer) my thoughts go crazy...

https://connect.mayoclinic.org/comment/873362/

Discussion: Calming the gut brain

Support Group: Pancreatic Cancer

Posted: Jun 6, 2023