Pancreatic Cancer Support Group

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Comments (897)

The gastrointestinal doctors I’ve spoken with say CA 19-9 is not a diagnostic test for PC...

https://connect.mayoclinic.org/comment/936355/

Discussion: Why CA-19-9 Test not included in annual lab tests

Support Group: Pancreatic Cancer

Posted: Sep 25, 2023

I know exactly how you and your husband feel. My doctor calls it “scanaxiety”. It’s normal...

https://connect.mayoclinic.org/comment/985285/

Discussion: What are the symptoms to look for for pancreatic recurrence?

Support Group: Pancreatic Cancer

Posted: Dec 22, 2023

Hello everyone. My husband was diagnosed In July of 2018 with cancer in the pancreas tail...

https://connect.mayoclinic.org/comment/285124/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 12, 2019

Tail pancreatic cancer. I started with a CA 19-9 of 690 and stage 3. One month...

https://connect.mayoclinic.org/comment/703691/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Apr 29, 2022

Mario, I’m not a doctor but I had I had an IPMN cyst removed from the...

https://connect.mayoclinic.org/comment/325594/

Discussion: Benign or Malignant IPMN? What to do next?

Support Group: Pancreatic Cancer

Posted: Mar 31, 2021

Hi joining on behalf of relative dx pancreatic cancer 12/2019. completed radiation and chemotherapy. had gb...

https://connect.mayoclinic.org/comment/1047662/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 9 3:03am

I have taken the Grail test twice, November 2021 and 2022, with negative findings for any...

https://connect.mayoclinic.org/comment/852405/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

https://connect.mayoclinic.org/comment/785001/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Dec 15, 2022

Colleen, thanks for your post and for pulling this thread higher in the list! And @stageivsurvivor...

https://connect.mayoclinic.org/comment/921408/

Discussion: Questions about maintenance chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 30, 2023

Thanks again markymarkfl. Few more questions popped up from the "home team"...LOL 1. May I ask...

https://connect.mayoclinic.org/comment/1007896/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 1 1:43pm

I saw a surgeon at URMC today. While he does not believe a biopsy is warranted...

https://connect.mayoclinic.org/comment/701663/

Discussion: Concerned: I'm beginning to suspect I have pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Apr 23, 2022

Beachdog our stories continue to align. My husband 's ca 19-9 has also been rising fast...

https://connect.mayoclinic.org/comment/291703/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 14, 2021

I had the whipple prior to having chemo. It brought my ca 19 9 down from...

https://connect.mayoclinic.org/comment/1036388/

Discussion: Husband’s CA19-9 plunged by 90%

Support Group: Pancreatic Cancer

Posted: Mar 19 9:26am

My stage IV pancreatic cancer was discovered “incidentally” already all over my liver six months ago....

https://connect.mayoclinic.org/comment/1076040/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: May 28 1:18am

I too am stage IV with mets to my lungs. I was diagnosed in June of...

https://connect.mayoclinic.org/comment/1084307/

Discussion: Mom diagnosed with stage 4 adenocarcinoma of the pancreas

Support Group: Pancreatic Cancer

Posted: Jun 10 11:44am

@susan2018 At this the plan is to check .CA 19-9 monthly. In February at Mayo it...

https://connect.mayoclinic.org/comment/285227/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jul 20, 2020

Thank you so much. My husband was scheduled to have 12 Folfirinox treatments after his Whipple...

https://connect.mayoclinic.org/comment/935964/

Discussion: Any thoughts on the mRNA vaccine trials for pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Sep 25, 2023

My husband's CA 19-9 was 24,000 at first diagnosis and it had bumped up to 34,000...

https://connect.mayoclinic.org/comment/928546/

Discussion: CA-19 has elevated even more

Support Group: Pancreatic Cancer

Posted: Sep 11, 2023

What a great ray of hope your post is Your journey is somewhat similar to what...

https://connect.mayoclinic.org/comment/920369/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Aug 28, 2023

Guess I need to get in on this. Im on the liver transplant section of Connect......

https://connect.mayoclinic.org/comment/275551/

Discussion: Pancreatic Cancer arising from IPMN pancreatic cyst

Support Group: Pancreatic Cancer

Posted: Jan 11, 2020

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