Pancreatic Cancer Support Group

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Comments (1,170)

Hi. My husband was diagnosed with pancreatic cancer in March. he started Folfirinox April 1st. Initial...

https://connect.mayoclinic.org/comment/712079/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: May 27, 2022

I have good news. The PET scan showed no evidence of disease. Blood tests came back...

https://connect.mayoclinic.org/comment/1137912/

Discussion: Surgery Follow-up and pathology report

Support Group: Pancreatic Cancer

Posted: Sep 7, 2024

The shortage started for us happened in May. They switched us over to the oral meds...

https://connect.mayoclinic.org/comment/1036507/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 19, 2024

becky, I am not a medical professional. My sense from reading thousands of threads: - being...

https://connect.mayoclinic.org/comment/980954/

Discussion: Is it possible to have very high CEA and CA19-9 without cancer?

Support Group: Pancreatic Cancer

Posted: Dec 15, 2023

Been having pain right side and center of abdomen for 2 years. First occasionally but recently...

https://connect.mayoclinic.org/comment/927889/

Discussion: CA 19-9 high but no malignancy

Support Group: Pancreatic Cancer

Posted: Sep 10, 2023

I have done 14 rounds of same chemo, then y90 and last month a pancreadectomy. My...

https://connect.mayoclinic.org/comment/800814/

Discussion: Pancreatic cancer and CA19-9

Support Group: Pancreatic Cancer

Posted: Jan 24, 2023

I have had a BD-IPMN since 2015 (Mayo). I have had MRCPs and labs every 6-12...

https://connect.mayoclinic.org/comment/1313457/

Discussion: Anyone have/had BD-IPMN (branch duct intraductal papillary mucinous)?

Support Group: Pancreatic Cancer

Posted: May 26 3:02pm

Hi there, Following your conversation on CA-19-9 increases. My husband was diagnosed in November 2022 tumor...

https://connect.mayoclinic.org/comment/1036471/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 19, 2024

I thank everyone for their responses to my inquiry on why CA 19-9 is not a...

https://connect.mayoclinic.org/comment/939210/

Discussion: Why CA-19-9 Test not included in annual lab tests

Support Group: Pancreatic Cancer

Posted: Sep 30, 2023

Hi everyone. My mom was diagnosed with pancreatic cancer in July 2022 and was not eligible...

https://connect.mayoclinic.org/comment/803526/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 29, 2023

Hi @catrinka58. Thank you for sharing. I will continue to update on my husband's progress. He...

https://connect.mayoclinic.org/comment/759385/

Discussion: Pancreatic Cancer - No signs of spread, Whipple Candidate

Support Group: Pancreatic Cancer

Posted: Oct 10, 2022

I am not a medical professional of any type, only a patient. So I can speak...

https://connect.mayoclinic.org/comment/1129068/

Discussion: CA19-9 rise while on maintenance chemo

Support Group: Pancreatic Cancer

Posted: Aug 23, 2024

Thanks for your reply. It helped. My surgeon who is at MSK in NYC told me...

https://connect.mayoclinic.org/comment/1317817/

Discussion: I'm back: increasing CA19-9 was accurate indicator of recurrence.

Support Group: Pancreatic Cancer

Posted: Jun 1 9:39am

Beach Dog My wife had her scan 0n 1/21/22 after the 4 treatments of Onivyde and...

https://connect.mayoclinic.org/comment/680483/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 13, 2022

Your wife's journey sounds very similar to my husband's. Diagnosed May 2109, 12 folfirinoc rounds, then...

https://connect.mayoclinic.org/comment/612069/

Discussion: Pancreatic cancer recurrence at 2 years: Treatment change

Support Group: Pancreatic Cancer

Posted: Jun 27, 2021

They gave me 11 months June 2022. I am still here! I have stage 4 but...

https://connect.mayoclinic.org/comment/1282391/

Discussion: 39 year old brother

Support Group: Pancreatic Cancer

Posted: Apr 15 9:55am

Golly, I'm sorry to hear that. You are absolutely right: CT scans cannot see small lesions....

https://connect.mayoclinic.org/comment/973411/

Discussion: Pseudo cyst / CA 19-9 trending up

Support Group: Pancreatic Cancer

Posted: Dec 1, 2023

First, I am not a medical professional. My posts related to my sister's fight are accessible...

https://connect.mayoclinic.org/comment/955039/

Discussion: Question regarding “dead” tumor

Support Group: Pancreatic Cancer

Posted: Oct 28, 2023

I really like your attitude! So many people said “oh” like too bad when they heard...

https://connect.mayoclinic.org/comment/951681/

Discussion: My cancer returned after 2 1/2 years: Nervous removal of pancreas

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

I can't speak to the pricey part due to the way my insurance works. @markymarkfl has...

https://connect.mayoclinic.org/comment/969408/

Discussion: CA19-9 Test: How often to test?

Support Group: Pancreatic Cancer

Posted: Nov 23, 2023

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