Pancreatic Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

572 total results

Comments (528)

61 yr old patient, liver mets after 7 months of whipples. Now under chemo. Not able...

https://connect.mayoclinic.org/comment/1062766/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

I have just started on pancreatic enzymes and do not know what I am doing ....

https://connect.mayoclinic.org/comment/914617/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 17, 2023

Creon needs more explanation from its manufacturer, or maybe they just can't cover all the side...

https://connect.mayoclinic.org/comment/257739/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 27, 2020

I have had struggles with enzyme treatments as well and the pancreatic team nutritionist has worked...

https://connect.mayoclinic.org/comment/885272/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jun 26, 2023

I take Zenpep as well and utilize Nestle’s program. I’ve taken Creon and not noticed any...

https://connect.mayoclinic.org/comment/1143518/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 18, 2024

Try to not eat any fatty foods, and no fried foods. That might help with your...

https://connect.mayoclinic.org/comment/275828/

Discussion: Whipple procedure: What is the recovery like?

Support Group: Pancreatic Cancer

Posted: Sep 24, 2019

I pushed send too quickly. I would suggest talking to your doctor if you haven’t already....

https://connect.mayoclinic.org/comment/964750/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 14, 2023

Hello & good day. Hubby had lap distal panc & spleen on the 6 Sept. and...

https://connect.mayoclinic.org/comment/951552/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

I was taking something which eludes me at the moment but my doctor changed it to...

https://connect.mayoclinic.org/comment/769354/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2022

I wish your husband a good recuperation. If your situation is similar to ours, seek nutritional...

https://connect.mayoclinic.org/comment/208589/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

I too have recently been diagnosed with severe EPI and got samples of Creon and Trulance....

https://connect.mayoclinic.org/comment/861443/

Discussion: New Diagnosis of EPI, taking Creon: Sad and scared

Support Group: Digestive Health

Posted: May 17, 2023

There are five Rx pancrealipase products in the US with Creon being the most frequently prescribed....

https://connect.mayoclinic.org/comment/1175890/

Discussion: Has any one found an alternative to Creon?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2024

Concurrent with PanCan IV, also Type 2 Diabetes. I had been losing weight....reversed it with Creon...

https://connect.mayoclinic.org/comment/794140/

Discussion: Feet edema

Support Group: Pancreatic Cancer

Posted: Jan 8, 2023

I have also been taking Creon for about six years. It provides the enzymes to digest...

https://connect.mayoclinic.org/comment/1244865/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 6:14pm

Hello jillysmity, are you taking Creon before you eat? That may help; it’s by rx only....

https://connect.mayoclinic.org/comment/1077573/

Discussion: Does anyone else have digestive issues? Hard and distended abdomen?

Support Group: Pancreatic Cancer

Posted: May 30, 2024

Thanks!! I struggled many years to be thin or thinner than I was....finally now after my...

https://connect.mayoclinic.org/comment/275831/

Discussion: Whipple procedure: What is the recovery like?

Support Group: Pancreatic Cancer

Posted: Sep 27, 2019

Hello steveskolnick! I took Creon (36k units) 5-7 months after surgery, then tried OTC papaya enzymes...

https://connect.mayoclinic.org/comment/971760/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

Hi Colleen Creon 25000 mg 3 x a day and 10000 mg in between meals (snacks)...

https://connect.mayoclinic.org/comment/957951/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Nov 2, 2023

He takes 5 Creon throughout his meal, and yes, has a lot of gas!! Maybe that's...

https://connect.mayoclinic.org/comment/860524/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

Hi @lar38 - I weigh a bit over 200 #'s and have taken 3 (36,000) Creon...

https://connect.mayoclinic.org/comment/1293238/

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Apr 30 7:33am

Cancer

8212

19 minutes ago

Neuroendocrine Tumors (NETs)

2529

59 minutes ago

Visiting Mayo Clinic

5415

1 hour ago

Transplants

3711

2 hours ago

Diabetes & Endocrine System

6617

3 hours ago