Pancreatic Cancer Support Group

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Comments (510)

I pushed send too quickly. I would suggest talking to your doctor if you haven’t already....

https://connect.mayoclinic.org/comment/964750/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 14, 2023

Hello & good day. Hubby had lap distal panc & spleen on the 6 Sept. and...

https://connect.mayoclinic.org/comment/951552/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

I was taking something which eludes me at the moment but my doctor changed it to...

https://connect.mayoclinic.org/comment/769354/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2022

I wish your husband a good recuperation. If your situation is similar to ours, seek nutritional...

https://connect.mayoclinic.org/comment/208589/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

There are five Rx pancrealipase products in the US with Creon being the most frequently prescribed....

https://connect.mayoclinic.org/comment/1175890/

Discussion: Has any one found an alternative to Creon?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2024

Concurrent with PanCan IV, also Type 2 Diabetes. I had been losing weight....reversed it with Creon...

https://connect.mayoclinic.org/comment/794140/

Discussion: Feet edema

Support Group: Pancreatic Cancer

Posted: Jan 8, 2023

Creon should not give you any side effects. My husband takes 3x150mg with each meal. He...

https://connect.mayoclinic.org/comment/1244210/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 5:36am

Hello jillysmity, are you taking Creon before you eat? That may help; it’s by rx only....

https://connect.mayoclinic.org/comment/1077573/

Discussion: Does anyone else have digestive issues? Hard and distended abdomen?

Support Group: Pancreatic Cancer

Posted: May 30, 2024

Thanks!! I struggled many years to be thin or thinner than I was....finally now after my...

https://connect.mayoclinic.org/comment/275831/

Discussion: Whipple procedure: What is the recovery like?

Support Group: Pancreatic Cancer

Posted: Sep 27, 2019

I took Creon and, when it became very difficult to obtain, switched to Zenpep. I was...

https://connect.mayoclinic.org/comment/1244439/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Feb 24 9:53am

Hi Colleen Creon 25000 mg 3 x a day and 10000 mg in between meals (snacks)...

https://connect.mayoclinic.org/comment/957951/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Nov 2, 2023

I had my whipple in April 2022. I had infections after my surgery as well. Had...

https://connect.mayoclinic.org/comment/1254080/

Discussion: Sepsis occurrences following whipple

Support Group: Pancreatic Cancer

Posted: Mar 9 2:58pm

Hello steveskolnick! I took Creon (36k units) 5-7 months after surgery, then tried OTC papaya enzymes...

https://connect.mayoclinic.org/comment/971760/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

He takes 5 Creon throughout his meal, and yes, has a lot of gas!! Maybe that's...

https://connect.mayoclinic.org/comment/860524/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

altc321, christinekaranges, I was put on Creon 24k units 2 with meals and my gastro doc...

https://connect.mayoclinic.org/comment/1121815/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 11, 2024

Undigested fat from lack of lipase enzyme is not the only cause for floating stool. Eating...

https://connect.mayoclinic.org/comment/852481/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

I had pancreas, spleen, and gallbladder removed in July. I have a great appetite, but 3-4...

https://connect.mayoclinic.org/comment/971058/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

My husband was also put on Zenpep and we are wondering if Creon would work better....

https://connect.mayoclinic.org/comment/878176/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

Creon seems permanent with me. The CT scans have shown atrophic pancreas, I believe this means...

https://connect.mayoclinic.org/comment/987589/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

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