Pancreatic Cancer Support Group

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Comments (657)

My husband had Whipple and just completed 6 mths of chemo. He's on Creon. I'm looking...

https://connect.mayoclinic.org/comment/878272/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

No problem with Humana PPO. In fact over 7 years, whipple, all types of chemo, sbrt...

https://connect.mayoclinic.org/comment/682372/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2022

If you go to creon website you can get it ay a discount. We've gotten 2...

https://connect.mayoclinic.org/comment/285220/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jul 14, 2020

I had a complete pancreatectomy, spleen, duodenum, partial stomach, etc. Take Creon with any food. Doing...

https://connect.mayoclinic.org/comment/1101401/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 8, 2024

Hi Matt Thanks for the info. On my drug plan I'd have to pay $400 a...

https://connect.mayoclinic.org/comment/1312400/

Discussion: Pancreatic enzymes: They are expensive, any suggestions?

Support Group: Pancreatic Cancer

Posted: May 25, 2025

I am taking Creon 36000 per meal for two weeks now and now I have blurred...

https://connect.mayoclinic.org/comment/948191/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2023

Go online to read all side effects and you can also go to Abbvie.com, the manufacturers...

https://connect.mayoclinic.org/comment/1080061/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Jun 3, 2024

We are just starting Creon and it is a hard one to figure out. My husband...

https://connect.mayoclinic.org/comment/678086/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 6, 2022

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

So far, I have not had any recovery of exocrine function (-almost 2 1/2 years since...

https://connect.mayoclinic.org/comment/884033/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

My wife is still taking Creon and has actually upped the full meal dose to 3...

https://connect.mayoclinic.org/comment/657791/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2021

He gets pretty nauseated after the chemo and for a week doesnt care about eating but...

https://connect.mayoclinic.org/comment/642296/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2021

I was diagnosed with IBS before my diagnosis of CP, EPI and severe protein calorie malnutrition...

https://connect.mayoclinic.org/comment/1465212/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Dec 21, 2025

@ Johnny 1955 Hello Johnny. I had Whipple Mid June this year. I had similar issues...

https://connect.mayoclinic.org/comment/1461095/

Discussion: Belly pain, cramps and painful gas months after Whipple: Thoughts?

Support Group: Pancreatic Cancer

Posted: Dec 14, 2025

I am on Zenpep as my plan does not approve Creon. I understand that they are...

https://connect.mayoclinic.org/comment/1445347/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 23, 2025

I also had these removed. Creon was necessary for about 2 months. I journaled my food...

https://connect.mayoclinic.org/comment/971613/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

I also wonder if I am taking too much creon. I have lots of painful gas...

https://connect.mayoclinic.org/comment/1472793/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Jan 2 10:13am

@allioops Optimization of Creon is easily accomplished using the dosing calculator at pertcalculator.org. The site also...

https://connect.mayoclinic.org/comment/1471750/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Dec 31, 2025

Foods that bind? Steel cut oatmeal, baked potato, rice then progress slowly to other solid food...

https://connect.mayoclinic.org/comment/1110902/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 24, 2024

I have been taking Creon 12000 unt for about a year. I have gained all my...

https://connect.mayoclinic.org/comment/1205242/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 6, 2025

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