Support Groups

Osteoporosis & Bone Health Support Group

Public Support Group
7,284 total results
Discussions (215)
Raloxifene Question
Background: I am on Raloxifene (Evista) and like it but my Endocrinologist wants me to change to a anabolic bone building therapy (Tymlos, Forteo, Evenity)...
Last active: Apr 21, 2023
Anyone Have Exp w/T-6 Fracture & Weighted Vest?
Does anyone with a T-6 compression fracture have experience wearing a weighted vest? What type and how many lbs? Did it help? I’m 76. My...
Last active: Dec 12, 2023
Does anyone self pay for an anabolic?
I have been told by one doctor that I probably won’t qualify with my insurance company for an anabolic, without first trying something like fosomax...
Last active: Jun 15 7:26am
Younger than usual with severe osteoporosis
Looking for others with severe osteoporosis at a "youngish" age, for mutual support. I am 53 with severe osteoporosis---t-scores: lumbar -3.7, and femoral neck -3.2....
Last active: Aug 21 6:28pm
Choosing Our Poison
Our bodies are very complex entities. The drugs used to treat Osteoporosis can also affect other functions but that often seems to be ignored or...
Last active: Jun 29 9:45pm
Anyone else being treated for Osteoporosis and Scoliosis?
Greetings: I just finished the 12 month course of Evenity without any serious problems. Other than occasional soreness at the injection sites on my arms,...
Last active: May 13, 2023
Recently diagnosed with severe osteoporosis of lumbar spine -3.4 T sco
I just saw an endocrinologist (referred by my OB/GYN) and all of my bloodwork came out within normal ranges. Although she did not test my...
Last active: Apr 1 6:51pm
Bone meds prior to spinal fusion
I had seen a doctor recommended by my PCP to explore injectables - spine is -1.9 and hip is -2.3, worse than scan two years...
Last active: Jan 12, 2023
Taking Tymlos but Forteo recommended
Has anyone switched from Tymlos to Forteo and had fewer side effects? I went to a new endocrinologist today. She said that in her experience,...
Last active: Oct 23 9:11am
Which specialist is best-Rheumatologist, Endocrinology, or Physiology?
I am beginning this Osteoporosis journey. 2 yrs ago the Rheumatologist had some labwork done and a couple x-rays and said that Evenity would be...
Last active: Jun 20, 2023
CTX Testing Question
All, I asked my new doc about having a CTX done since I am entering the post-Evenity (and Tymlos) phase of my treatment plan. Since...
Last active: Jul 25 6:50pm
For those with mild osteopenia but multiple fragility fractures
My dexascans show mild osteopenia ... -lumbar spine -2.1, total hip -2.0 and femoral neck at -2.2. I am 69 but seem to have lost...
Last active: Jun 23 10:41am
Those with Vertebral Fractures - Please share your story and advice
I am 74 with severe osteoporosis, worse in my spine (T-score -4.1). I believe I recently developed a vertebral fracture and will see my PCP...
Last active: Oct 15 1:47pm
Supplements with Tymlos or Forteo
I tried for years to improve my bones naturally with diet and exercise. Then I broke 4 bones in 13 months. I tried the full...
Last active: Aug 19 4:41pm
DEXA results after mostly partial Tymlos dosing
A few people have asked me to post my DEXA results since I did not do a full dose of Tymlos (except for a few...
Last active: Jun 6 11:38am
High calcium score in 24 hr urine test. What's next for testing?
I have severe osteoporosis, with lumbar spine DEXA of -3.9, which is 10.7% worse than 2.5 yrs ago when it was -3.2. My endocrinologist ordered...
Last active: Jun 30 9:42am
Financial discussions/tips concerning expensive treatment
The last 2 days have seen some pertinent posts in regard to how and what to do to secure help for the expensive treatments/ the...
Last active: Feb 14 6:46pm
Need Dr supportive of trying AlgaeCal instead of Prolia
I'm having a doosey of a time finding a doctor who is open to my using AlgaeCal Plus and Strontium boost as first line of...
Last active: 17 hours ago
Tymlos and exercise
Does Tymlos work even if you can't exercise much? Any type of exercise other than brief walking or lifting seems to cause spasms and dystonia...
Last active: Nov 10 9:35am
What's the evidence on Calcium and Vitamin D for bone density?
A recent bone density test came back in the low average range for my age. My OBGYN recommended calcium and vitamin D. I checked with...
Last active: 4 days ago