Support Groups

Osteoporosis & Bone Health Support Group

Public Support Group
5,526 total results
Discussions (212)
DEXA Scan Discrepancies: Spine improvement and hip worsened
Good morning to all,I just received my DEXA results from last week’s scan, and they were a classic good news, bad news story.The good news...
Last active: Mar 14, 2024
Younger than usual with severe osteoporosis
Looking for others with severe osteoporosis at a "youngish" age, for mutual support. I am 53 with severe osteoporosis---t-scores: lumbar -3.7, and femoral neck -3.2....
Last active: Jul 6 1:06pm
Did my T-scores go down?
I had a scan in Oct 2021, then one 2 years later in Oct 2023. I see the following T-scores: (L1-L4) -3.1 --> -2.9 L1...
Last active: Mar 6, 2024
Is it common to switch from one osteoporosis drug to another?
I honestly thought most people worked with their physician to choose a drug that felt right for their circumstances, and stuck with it. I also...
Last active: Feb 5 12:23pm
Male Osteoporosis - The Missing Link
A discussion amongst males who have osteoporosis. I am a 65 yo male who triggered a dormant case of osteoporosis as a result of a...
Last active: Jul 19, 2022
Recently diagnosed with severe osteoporosis of lumbar spine -3.4 T sco
I just saw an endocrinologist (referred by my OB/GYN) and all of my bloodwork came out within normal ranges. Although she did not test my...
Last active: Apr 1, 2024
Choosing Our Poison
Our bodies are very complex entities. The drugs used to treat Osteoporosis can also affect other functions but that often seems to be ignored or...
Last active: Jun 29, 2024
51 yo just diagnosed with Osteoporosis
I had my first DEXA scan at 49 and it came back as having osteopenia. I received a diagnosis of osteoporosis this week, with 14.7%...
Last active: Mar 29, 2024
Loss of BMD in hips after taking Forteo or teriparatide?
I’m scheduled to start a biosimilar to Forteo in a couple of weeks and I just read a post today from a woman who lost...
Last active: Sep 24, 2024
Bone Marker Results -??
In an effort to get the best medical care I can for my severe Osteoporosis, I asked my Endo Dr to include Bone Markers. She...
Last active: Apr 24 2:09pm
Can long-term use of SSRIs possibly contribute to osteoporosis?
I have been on 225mg venlafaxine (Effexor) for 25 years and I am now 68yo. I was diagnosed with osteoporosis about 13 years ago. I...
Last active: Dec 5, 2023
Bone meds prior to spinal fusion
I had seen a doctor recommended by my PCP to explore injectables - spine is -1.9 and hip is -2.3, worse than scan two years...
Last active: Jan 12, 2023
Has anyone had new on of osteoarthritis or flare up with Reclast?
In January 2025, I had intravenous zolendronic acid (Reclast) for osteoporosis the first time. The following week (January 21) I began to experience right knee...
Last active: Jul 9 6:10pm
P1NP decrease with 9 month drug holiday
I just had my lab results come in and from Sept of 24 at my last appt, my P1NP dropped from 74 to 19. My...
Last active: May 4 1:26pm
CTX Blood test
I have osteopenia and just started with a new endo. I was on bisphosphonates for 10 years, then nothing for 5, then back on Actonel...
Last active: Aug 31, 2024
Bisphosphonates after Evenity
OK I am back again and wanting to pull my hair out. When I initially was diagnosed with Osteoporosis (extremely bad bone density test), the...
Last active: May 14 3:16pm
What would you do? Medication.
Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am...
Last active: May 21, 2024
Has any gotten blood clots on Evista (Raloxifene)?
I am four years out from completion of treatment for triple negative breast cancer. I was diagnosed with osteoporosis after treatment and Prolia was recommended....
Last active: Apr 15 7:33pm
Evenity Injection Site Pain and The Next Step
Hello Everyone - I just had my 9th set of Evenity injections in my arms two days ago. So far this is by far the...
Last active: 3 days ago
Struggling with making an osteoporosis treatment decision
I am just struggling to make a decision about my treatment. I had my first bone density test and found I have osteoporosis. I have...
Last active: Mar 11 5:11pm