Support Groups

Neuropathy Support Group

Public Support Group
9,706 total results
Discussion
Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom...
Support Group: Neuropathy
Last active: Jan 26 8:52pm
Discussion
Best Antibiotics if you have PN?
Just wondering if anyone has experience, or links from reputable studies, of the best or worst antibiotics a person with existing PN should take (or...
Support Group: Neuropathy
Last active: Dec 29, 2022
Discussion
New to neuropathy, terrified and seeking advice from you guys
I've had neuropathy in my feet for a couple of years, and the neurologist I consulted has never tracked down the cause. I didn't worry...
Support Group: Neuropathy
Last active: Sep 24, 2024
Discussion
Use of Biotin
I am an 85-year-old male with alcohol-induced peripheral neuropathy, diagnosed 10 years ago. My symptoms are painless numbness in both feet initially but extending up...
Support Group: Neuropathy
Last active: Mar 8 6:43am
Discussion
single cold toe - what to do?
I have one toe, a big toe on one foot, that feels very cold and uncomfortable, but the toe is warm to the touch with...
Support Group: Neuropathy
Last active: Jan 20 2:02pm
Discussion
Small Fiber Nerve Neuropathy and exercise
I have been fortunate that my SFNN has been fairly mild. I take 600 mg of Gabapentin twice daily. I had been playing pickleball 5...
Support Group: Neuropathy
Last active: Jan 25 3:49pm
Discussion
Small Fiber Neuropathy burning?
Hi everyone! I hope you’re all doing well with the quarantine. We are hanging in there!! I have a question about small fiber neuropathy. As...
Support Group: Neuropathy
Last active: Mar 22 11:09am
Discussion
Psychological effects of living with neuropathy
This is more of a whine than a question. I get so tired, not just physically but psychologically, of living with the neuropathy and the...
Support Group: Neuropathy
Last active: Dec 1, 2023
Discussion
Pain returns after standing or walking
I’m currently taking Gabapentin and amitriptyline which has helped, just breaking through in the evenings. It feels like I’ve entered a new phase in this....
Support Group: Neuropathy
Last active: Nov 10, 2024
Discussion
Dose anyone else feel like neuropathy is taking over their life?
I am in search of others that are in the same pain as I am. I feel like that the neuropathy has taken over my...
Support Group: Neuropathy
Last active: May 29, 2024