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Neuropathy Support Group

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Cervical myelopathy mistaken for neuropathy
I have been told for almost 10 years I have neuropathy . It was relatively mild for the most part . Recently I had serious...
Support Group: Neuropathy
Last active: Apr 30, 2023
Duloxetene for neuropathy & back pain
Hello all, I wasn’t sure to what extent it’s acceptable to discuss different medications on this forum, so if not allowed no worries. I recently...
Support Group: Neuropathy
Last active: Jul 1, 2021
Has anyone gotten any relief by taking Klonopin for CIPN?
Hello,I received 8 rounds of chemo back in late 2021 for gastric cancer. Awful side effect of this was CIPN mostly in my feet. Didn't...
Support Group: Neuropathy
Last active: Nov 12, 2025
Recommendations for Neurologists and Pain Management Doctors
Does anyone in the Pennsylvania area (could be surrounding states) have a neurologist and/or pain management practice that they could highly recommend? I have been...
Support Group: Neuropathy
Last active: Sep 20, 2024
Has anybody ever heard of anything like this?
I’m kind of new to Neuropathy. Anyways, about three months ago I hurt my back at the gym, went to my doctor. He told me...
Support Group: Neuropathy
Last active: Oct 2, 2023
Gave Nooro a try - A WARNING
From my time here on the Mayo Clinic Connect and my own experience I realize that there is no magic bullet for painful feet from...
Support Group: Neuropathy
Last active: Jul 17, 2025
Anyone else with PN and night sweats out there?
I wear wool socks to sleep in, but have moved from warm pajamas to a cooler cotton gown because of night sweats. The pain in...
Support Group: Neuropathy
Last active: Jan 17, 2020
Medical marijuana vape for pain relief from Peripheral Neuropathy?
Hello, Does anyone here use a vape cartridge for pain relief? My feet hurt all the time, not terrible in the morning but by evening...
Support Group: Neuropathy
Last active: Jan 18 1:55pm
NEUROPATHY 101! Learn with my past recovery and reinjure!
Ok guys! Thank you for reading! I want to express my wholeheartedly prayers to everyone who is enduring nerve damage and neuropathy! It's changed my...
Support Group: Neuropathy
Last active: May 27, 2025
Atrophy in left foot and big toe is completely pointing down.
Hi there! So happy to find this group. I went to see a neurologist who said that my legs were beginning to atrophy. He wanted...
Support Group: Neuropathy
Last active: May 30, 2022
Diagnosed with moderate/severe poly neuropathy: sensory motor
Hi, Formally diagnosed with polyneuropathy 4 years ago. recent nerve conduction test indicated moderate-severe condition. To date, numb toes, feet, ankles toward knees. It is...
Support Group: Neuropathy
Last active: Mar 10, 2023
CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD
It started out w restless leg syndrome, then my feet started burning as I sat at my desk @ work. It got so intense that...
Support Group: Neuropathy
Last active: Feb 24 1:40pm
DADS-M - anyone else with this diagnosis I’d love to hear from you
Hello fellow neuropathy sufferer and survivor. I have had DADS-M. Now for about 12 years. It started in my feet with burning pain, tingling, shooting...
Support Group: Neuropathy
Last active: 12 hours ago
Swim Suits for Neuropathy Hands
Hi - My arms/hands/fingers are as affected by my PN as much my legs/feet/toes, so I am unable to swim since I can’t keep my...
Support Group: Neuropathy
Last active: Feb 4, 2023
Bilateral Knee Numbness Leading to Loss of Standing/Walking
I had a previous Disc Herniation in the Lumber L4/5, which was Large, to the left and center, with stenosis. This led to difficulty standing/walking...
Support Group: Neuropathy
Last active: Jan 8 9:19am
I truly need help,
I’ve been suffering for almost two years now. It started when all my finger nails basically fell and fingers hurt so badly. Dr sent me...
Support Group: Neuropathy
Last active: Jun 12, 2025
Peripheral Hyper sensitization Neuropathy
Has anyone experienced Peripheral Hyper sensitization Neuropathy? I had never heard of such a thing. Last summer was an absolute nightmare for me! I can’t...
Support Group: Neuropathy
Last active: Feb 29, 2024
Tightness in Knees
In a space of 3 weeks in March 2023 my mild PN (distance-dependent axonal) jumped from my feet to my ankles and then my knees...
Support Group: Neuropathy
Last active: Jun 7, 2023
Is it possible to have Peripheral Neuropathy in just one leg and foot?
Every time I go to my regular primary doctor, or to the hospital, or urgent care, I tell them I have, pain in my foot,...
Support Group: Neuropathy
Last active: Nov 26, 2023
Sensory Ganglionopathy help!!
I have had Sensory Ganglionopathy for a year now. It effects me walking and am bedridden a lot. I have no nerves left in my...
Support Group: Neuropathy
Last active: May 16, 2025