Neuropathy Support Group

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Comments (8,493)

@lourdes27 I can empathize with your situation. The symptoms you are describing are very similar to...

https://connect.mayoclinic.org/comment/157305/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 30, 2019

Hi @johnbishop , thank you for both the welcome and information. The answer to your question...

https://connect.mayoclinic.org/comment/1060535/

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 1, 2024

I've read so much stuff on the internet I can't remember what I read and what...

https://connect.mayoclinic.org/comment/819409/

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Mar 1, 2023

@jeffrapp Welcome to Connect. I appreciate your input. I don't have small fiber neuropathy, and my...

https://connect.mayoclinic.org/comment/260393/

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: Jul 10, 2019

It has been a 4 year journey filled with troubleshooting and misfires before landing on my...

https://connect.mayoclinic.org/comment/310343/

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: May 12, 2020

I live in Sioux Falls SD. I have had several auto immune problems for years( Graves...

https://connect.mayoclinic.org/comment/156759/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 4, 2018

@snowmass I can totally relate. I am a 54 year old single parent of a 14...

https://connect.mayoclinic.org/comment/1083002/

Discussion: Crawling sensation all over body

Support Group: Neuropathy

Posted: Jun 8, 2024

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

I don't know where to begin to keep this concise. I have small fiber neuropathy, pain,...

https://connect.mayoclinic.org/comment/830265/

Discussion: Alcohol Neuropathy???

Support Group: Neuropathy

Posted: Mar 22, 2023

Thank you for this reply and these thoughtful ideas. This is my reality now. I have...

https://connect.mayoclinic.org/comment/218937/

Discussion: Pudendal Nerve Entrapment/Neuropathy/Damage

Support Group: Chronic Pain

Posted: Dec 15, 2019

Hi Jim (@jimhd), I'm really happy to hear the spinal cord stimulator is giving you some...

https://connect.mayoclinic.org/comment/91991/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 20, 2017

Hi Robert, You should be skeptical of any solution that purports to fix a medical condition....

https://connect.mayoclinic.org/comment/91725/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Dec 9, 2016

Hi @sturner62 I BELIEVE EVERYTHING YOU ARE SAYING. So sorry to hear what you're going through....

https://connect.mayoclinic.org/comment/935861/

Discussion: Has anybody ever heard of anything like this?

Support Group: Neuropathy

Posted: Sep 25, 2023

Hi. I’m so sorry. I have ( more than likely) post surgical neuropathy but NO Dr...

https://connect.mayoclinic.org/comment/807047/

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 6, 2023

Hi Tim (@timmckinney). Welcome to Connect. I can share my story and maybe offer some hope....

https://connect.mayoclinic.org/comment/91804/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Mar 7, 2017

@clayhere @johnbishop @artscaping Hi Chris, Yes you're absolutely right about MFR and the layers underneath the...

https://connect.mayoclinic.org/comment/92385/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 31, 2018

I have the same thoughts on this as you. I see a lot of people on...

https://connect.mayoclinic.org/comment/285929/

Discussion: Vitamin B12 and Neuropathy

Support Group: Neuropathy

Posted: Dec 30, 2019

Hi, I think you need to send them an inquiry. Others have had the same issue...

https://connect.mayoclinic.org/comment/157448/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 10, 2019

Hello all neuropathy warriors regardless of onset or type.😃🙏🏻🇺🇸 It is quite the nightmare. I’m a...

https://connect.mayoclinic.org/comment/916704/

Discussion: Nerve pain treatment with INF - Anyone tried this?

Support Group: Neuropathy

Posted: Aug 21, 2023

I find it awkward speaking to the ladies when I can only make suggestions from man’s...

https://connect.mayoclinic.org/comment/218953/

Discussion: Pudendal Nerve Entrapment/Neuropathy/Damage

Support Group: Chronic Pain

Posted: Dec 21, 2019

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