Neuropathy Support Group

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Comments (514)

When I fly to Los Angeles, CA twice a year, l always ask for and sit...

https://connect.mayoclinic.org/comment/812637/

Discussion: SFN and dealing with a 14 hour flight, Anyone have experience?

Support Group: Neuropathy

Posted: Feb 16, 2023

On long flights, I wear 2 pairs of compression socks- one knee high and one ankle....

https://connect.mayoclinic.org/comment/799295/

Discussion: SFN and dealing with a 14 hour flight, Anyone have experience?

Support Group: Neuropathy

Posted: Jan 20, 2023

Hi @akalsas, I've never tried self lymph massage for headaches but have used it to help...

https://connect.mayoclinic.org/comment/967673/

Discussion: Self lymph drainage massage

Support Group: Neuropathy

Posted: Nov 19, 2023

I forgot to mention the biggest pain for me with the hammertoes is the toenails sometimes...

https://connect.mayoclinic.org/comment/912303/

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 13, 2023

My peripheral neuropathy has caused my feet and now my calves to be so cold. Whether...

https://connect.mayoclinic.org/comment/783794/

Discussion: Has Anyone Tried Chinese Herb Therapy?

Support Group: Neuropathy

Posted: Dec 11, 2022

Whether it's nerve damage or aggravation should be answered by a neurologist or other specialist. It...

https://connect.mayoclinic.org/comment/895092/

Discussion: Cold tingling every time I walk, nerve damage or aggravation?

Support Group: Neuropathy

Posted: Jul 13, 2023

I’m weaning myself off gabapentin from the 900 mg 3 times per day= (2700 mg) per...

https://connect.mayoclinic.org/comment/772965/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Nov 14, 2022

I had the same problem....just the fabric of my socks was painful. I had to cut...

https://connect.mayoclinic.org/comment/275130/

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Sep 10, 2019

I take the compression socks off at night. I think the explanation the doctor gave me...

https://connect.mayoclinic.org/comment/157386/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 18, 2019

@jchet, I have lymphedema in my legs and now wear compression socks during the day. Before...

https://connect.mayoclinic.org/comment/794036/

Discussion: SFN in feet

Support Group: Neuropathy

Posted: Jan 8, 2023

Hi @paul14, I have lymphedema in both legs along with small fiber peripheral neuropathy with only...

https://connect.mayoclinic.org/comment/879452/

Discussion: Numbness comes and goes

Support Group: Neuropathy

Posted: Jun 16, 2023

Hi Bcool123. I too have freezing feet very often. My circulation tests have come in great...

https://connect.mayoclinic.org/comment/784446/

Discussion: Has Anyone Tried Chinese Herb Therapy?

Support Group: Neuropathy

Posted: Dec 13, 2022

@eugenia007 I have small fiber peripheral neuropathy in both of my feet and the "burn" a...

https://connect.mayoclinic.org/comment/302568/

Discussion: Small Fiber Neuropathy burning?

Support Group: Neuropathy

Posted: May 22, 2020

Hi Heidi. I have not tried Capsaicin since the edema isn't constant. Interesting hack from the...

https://connect.mayoclinic.org/comment/879632/

Discussion: Numbness comes and goes

Support Group: Neuropathy

Posted: Jun 16, 2023

Welcome @desilfitter411, Before I developed lymphedema and started wearing compression socks, I found that socks made...

https://connect.mayoclinic.org/comment/1341196/

Discussion: socks used to eliminate pain due to neuropathy

Support Group: Neuropathy

Posted: Jul 4, 2025

@ktpatton I wear my 20-30 mmhg compression socks during the day with shoes or slippers in...

https://connect.mayoclinic.org/comment/1067987/

Discussion: Neuropathy treatments: How to avoid scams?

Support Group: Neuropathy

Posted: May 14, 2024

I do use the Normatec boots at the gym, but I do have a system and...

https://connect.mayoclinic.org/comment/1198011/

Discussion: Has anyone used compression boots to relieve neuropathy pain?

Support Group: Neuropathy

Posted: Dec 27, 2024

@fiesty76, I would think the question to the neurologist from me if told I have peripheral...

https://connect.mayoclinic.org/comment/321623/

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Sep 14, 2020

Hello @gnocchi, I also take Ubiquinol (CoQ10) daily but more for the heart benefits than anything...

https://connect.mayoclinic.org/comment/1483618/

Discussion: Co enzyme Q10

Support Group: Neuropathy

Posted: Jan 16 8:16am

@banjoman I did look into some of those neuropathy center type treatments early in my diagnosis...

https://connect.mayoclinic.org/comment/1525802/

Discussion: Neuropathy treatments: How to avoid scams?

Support Group: Neuropathy

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