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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Surgery on Small Intestine
Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...
Last active: Aug 15, 2025
Discussion
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Last active: Apr 23, 2025
Discussion
Anyone have a neuroendocrine tumor in small intestine?
Are these tumors benign? I was told it is small and most was removed by endoscopy but in an area in the duodenum where surgery...
Last active: Apr 2, 2025
Discussion
New NET in liver and small intestine
‘Im a 74 yr old woman. A NET tumor in my small intestine was removed about 18 months ago. This month a CT found two...
Last active: Nov 12, 2025
Discussion
I recently had surgery to remove NET in small intestine
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
Last active: May 12, 2025
Discussion
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
Last active: May 31 8:48pm
Discussion
Can anyone share information about NET in small intestine?
I was recently diagnosed with a NET in my small intestine. Dont know much and some of the internet sites are freaking me out about...
Last active: Jan 10, 2025
Discussion
Complicated NET Surgery Needed
They believe they found the original NET in my lower ileum. The plan or removing that part of the small intestine, appendix, and part of...
Last active: 1 day ago
Discussion
What do I need to know about NETS?
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Last active: Sep 11, 2023