Neuroendocrine Tumors (NETs) Support Group

I am newly diagnosed with a NET in the terminal ileum. I am scheduled for Surgery on 12/30. I am going to a surgeon who...

I have had severe dizziness and lightheadedness with my G2 ileum NET. My symptoms have been so severe I am unable to do any activity....

Nothing like going to the Mayo for a routine prostate MRI only to be told you have 2 carcinoid multi focal tumors each plus about...

Original dx 2012 NET in terminal ileum. Right hemicolectomy, small bowel resection with 22 mesentary nodes removed, 2 positive. Had my annual imaging 10/19/22 MRI...

I have been diagnosed with a small NET (6mm)in illeum of small intestine. I have a nutritionist friend who claims I can kill cancer cells...

This past year I was diagnosed with 2 primary NET's and had two surgeries to remove them. Since having a portion of small intestine/ileum removed...

My precious wife of 39 years has grade 3 NET in her liver and pancreas (also in the ileum that was removed). She is receiving...

I have been referred for cytoreductive/debulking surgery (at Mayo Jacksonville) because my scans show unexpected, fairly significant progression of the disease. I meet with the...

Has anyone experienced NET symptoms ie diarrhea, morning vomiting, nausea, headaches while lab work is all within normal range? I had net in ileum diagnosed...

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...