Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
77 total results
Discussion
Is there anything I can do for the bloating?
I am newly diagnosed with a NET in the terminal ileum. I am scheduled for Surgery on 12/30. I am going to a surgeon who...
Last active: Jan 21 10:35am
Discussion
Just got the news… stage 2 Carcinoid tumors
Nothing like going to the Mayo for a routine prostate MRI only to be told you have 2 carcinoid multi focal tumors each plus about...
Last active: Oct 23, 2022
Discussion
NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid
Original dx 2012 NET in terminal ileum. Right hemicolectomy, small bowel resection with 22 mesentary nodes removed, 2 positive. Had my annual imaging 10/19/22 MRI...
Last active: Nov 27, 2022
Discussion
NET in illeum, surgery or proper nutrition?!
I have been diagnosed with a small NET (6mm)in illeum of small intestine. I have a nutritionist friend who claims I can kill cancer cells...
Last active: Feb 8, 2024
Discussion
Need help with diet after a hemicolectomy....
This past year I was diagnosed with 2 primary NET's and had two surgeries to remove them. Since having a portion of small intestine/ileum removed...
Last active: Nov 4, 2023
Discussion
Low fiber diet with dairy intolerance and other food sensitivities
After a bowel resection to remove NETS, I lost the terminal ileum and part of the large intestine. I before surgery, i had food sensitivities,...
Support Group: Digestive Health
Last active: Apr 10 7:45pm
Discussion
Any tips about Cytoreductive, debulking Surgery?
I have been referred for cytoreductive/debulking surgery (at Mayo Jacksonville) because my scans show unexpected, fairly significant progression of the disease. I meet with the...
Last active: Oct 24, 2024
Discussion
NET symptoms despite follow-up lab work ok
Has anyone experienced NET symptoms ie diarrhea, morning vomiting, nausea, headaches while lab work is all within normal range? I had net in ileum diagnosed...
Last active: Dec 21, 2023
Discussion
Diagnosed with NET si-NET Stage 1 Grade 1
I went on 1/3 for my first preventative colonoscopy. I was scared to death as I am a worry wort lol. Colonoscopy went fine only...
Last active: Jun 21 7:40pm
Discussion
New and concerned about my wife.
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...
Last active: Mar 20 11:22am