Neuroendocrine Tumors (NETs) Support Group

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Comment

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

Hi, my nodule is also 2.3 cm but is in the upper left lung. Biopsy is...

https://connect.mayoclinic.org/comment/1076544/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Comment

I forgot to saying she got also lung infection, we thought because of the chemotherapy but...

https://connect.mayoclinic.org/comment/804781/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

@jessie1990 Understood. Still consult with a NETs specialist. Lung specialists are not necessarily NETs specialists and...

https://connect.mayoclinic.org/comment/1427228/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Comment

I have been diagnosed with a VERY rare lung disease called DIPNECH. Saw the expert at...

https://connect.mayoclinic.org/comment/1162603/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Comment

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Comment

In life there are both clubs we seek to join and clubs that seek to join...

https://connect.mayoclinic.org/comment/1357919/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Comment

Here's more information about submitting a request for a second opinion at Mayo Clinic http://mayocl.in/http://mayocl.in/1mtmR63. Let...

https://connect.mayoclinic.org/comment/981830/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Comment

Thank you so much for sharing your experience. My PET scan showed numerous spots in the...

https://connect.mayoclinic.org/comment/835101/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

Hello @juliab56, many people here have had lung surgeries; resections, lobectomy, or full pneumonectomy. I’m sure...

https://connect.mayoclinic.org/comment/1459883/

Discussion: Anyone have a pneumonectomy? How are you doing now?

Support Group: Lung Cancer

Posted: Dec 13, 2025

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