Neuroendocrine Tumors (NETs) Support Group

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Comment

I have a PNET which showed up on a GA68 DOTATATE PET. I now have a...

https://connect.mayoclinic.org/comment/911927/

Discussion: FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Comment

The lanreotide injections did not do what the oncologist had hoped for my sister. They are...

https://connect.mayoclinic.org/comment/1098968/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2024

Comment

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Comment

Hello @jadedprincess I appreciate you sharing your experience with PNET. I'm glad to hear that you...

https://connect.mayoclinic.org/comment/711987/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2022

Comment

Yes, I have elevated blood sugar and hair thinning as a side effect of Lanreotide treatment....

https://connect.mayoclinic.org/comment/1208239/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 9:37am

Comment

Hello, Anthony (@sturns). I would like to join Colleen (@colleenyoung) in welcoming you to Connect. It...

https://connect.mayoclinic.org/comment/718467/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 17, 2022

Comment

I have been on Lanreotide ( every 4 weeks) for 2+ yrs now for pNET with...

https://connect.mayoclinic.org/comment/1279952/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 9:41am

Comment

Hello @titansmistress, I see that this is your first post on Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/176686/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2018

Comment

@keisham808 - I had a large mass in the pancreas, that was discovered on a CT...

https://connect.mayoclinic.org/comment/865736/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

Comment

I have been diagnosed with 16 cm PNET in December 2022.. Discovered accidentally during CT of...

https://connect.mayoclinic.org/comment/798928/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2023

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