Neuroendocrine Tumors (NETs) Support Group

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Comment

I see a nets oncologist now. I did have the dotate pet scan and it came...

https://connect.mayoclinic.org/comment/1360087/

Discussion: stage 1A Net removed from upper left lobe

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30, 2025

Comment

Hello, @aliciabusiness5, and welcome to Mayo Connect. I you are dealing with lung NETs as well...

https://connect.mayoclinic.org/comment/1266869/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

Comment

@calimomma Hard to answer your question because you have a lot going on and I’m not...

https://connect.mayoclinic.org/comment/1232671/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2025

Comment

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Comment

Hello @1peg and welcome to the NETs support group on Mayo Connect. Connect is a good...

https://connect.mayoclinic.org/comment/1262844/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2025

Comment

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Comment

So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...

https://connect.mayoclinic.org/comment/1222859/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2025

Comment

I’ve had my first significant change recently. 3 months ago it looked like I had a...

https://connect.mayoclinic.org/comment/1223495/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2025

Comment

Hi thank you for your reply. I am in Australia. What are the side effects you...

https://connect.mayoclinic.org/comment/1205619/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

Comment

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

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