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Discussions (28)
Comments (269)
Comment
@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...
https://connect.mayoclinic.org/comment/1142729/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
@mcbyron How was your experience with Dr. Liu? I’m impressed by him after watching many presentations....
https://connect.mayoclinic.org/comment/1142067/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 15, 2024
Comment
I think you hit the nail on the head with the workaround. That being said, I...
https://connect.mayoclinic.org/comment/1126890/
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Discussion:
Lanreotide eventually becomes less effective, why?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 19, 2024
Comment
I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...
https://connect.mayoclinic.org/comment/1098642/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 3, 2024
Comment
I will be having robotic surgery on July 11 to have the NETs cancer removed from...
https://connect.mayoclinic.org/comment/1079515/
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Discussion:
Altitude change after lung biopsy/bronchoscopy
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2024
Comment
Lately, I have started coughing out of the blue for no reason. Has anyone else with...
https://connect.mayoclinic.org/comment/1066295/
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Discussion:
Describe your recovery from lung NET surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 11, 2024
Comment
Thank you Phyllisden, yes l saw my two doctors oncologists, and thorax thoracic surgeon. They said...
https://connect.mayoclinic.org/comment/1062199/
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Discussion:
NET not found on PET/CT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2024
Comment
Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do...
https://connect.mayoclinic.org/comment/1056725/
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Discussion:
NET not found on PET/CT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2024
Comment
Sorry l have been sick, Yes it was the scan we all were talking about! The...
https://connect.mayoclinic.org/comment/1033757/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 15, 2024
Comment
Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that...
https://connect.mayoclinic.org/comment/1022080/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
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