Neuroendocrine Tumors (NETs) Support Group

I have recently been diagnosed with the Differentiated Adenocarcinoma with Neuroendocrine Differentiations in the Gallbladder, Liver, and parts of right and left Abdomen. I have...

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Hi I’m a 42 year old female who had an upper left lobectomy in March of 2024 for neuroendocrine cancer. I was healing well but...

HelloMy father, mid 60's, non smoker, fit and healthy, underwent a lower left lobe lobectomy approx 1 month ago. He is recovering very well. The...

Good morning.I mentioned a while back that I was diagnosed with Malignant Neuroendocrine of the Lungs and have been undergoing Sandostatin LAR 30 mg/28 days...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...