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Discussions (44)
Comments (298)
Comment
My CgA is extremely high however my oncologist and gastrointestinal doctors are not concerned. Reason- there...
https://connect.mayoclinic.org/comment/1345098/
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Discussion:
NET tumor of pancreas (1 cm) diagnosed
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 10 10:43am
Comment
Hello My wife has had a good, sustained response to captem for her grade 2 stage...
https://connect.mayoclinic.org/comment/1358197/
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Discussion:
Unsure , questions on what to do
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28 8:13am
Comment
PNET. Non functioning. Gr 1. It was blocking the pancreatic duct and 1/2 my pancreas was...
https://connect.mayoclinic.org/comment/1340053/
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Discussion:
1/2 Pancreas, 1 lymph node involved. What treatment would be likely?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 2 9:58pm
Comment
Correct. Thanks for your reply! My NET team is not recommending a EUS biopsy for my...
https://connect.mayoclinic.org/comment/905588/
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Discussion:
1.7 cm Pnet recently found. Is a biopsy pretty standard protocol?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 1, 2023
Comment
Dear spinhead, I hope that you are doing well. I learned a lot from your post....
https://connect.mayoclinic.org/comment/1392691/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 13 7:25am
Comment
I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...
https://connect.mayoclinic.org/comment/1381475/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 28 4:02pm
Comment
I have Pnet with 23 tumors on my liver, and else where. They are looking at...
https://connect.mayoclinic.org/comment/712279/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 28, 2022
Comment
Dear Mike I was diagnosed with PNET on my pancreas on March 21, 2023. My PNET...
https://connect.mayoclinic.org/comment/880451/
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Discussion:
NET found by colonoscopy. What to expect and how should I approach
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17, 2023
Comment
I have a pNET. I have never taken creon. I was on CAPTEM for 12 months...
https://connect.mayoclinic.org/comment/950937/
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Discussion:
Is everyone with pNETs on creon?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 20, 2023
Comment
I found out the PNET (pancreatic neuroendocrine tumor) on the head of my pancreas last year...
https://connect.mayoclinic.org/comment/1001655/
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Discussion:
Need more information on NET in head of pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22, 2024
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