Neuroendocrine Tumors (NETs) Support Group

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Comment

Dear Mike I was diagnosed with PNET on my pancreas on March 21, 2023. My PNET...

https://connect.mayoclinic.org/comment/880451/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2023

Comment

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Comment

PNET. Non functioning. Gr 1. It was blocking the pancreatic duct and 1/2 my pancreas was...

https://connect.mayoclinic.org/comment/1340053/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2025

Comment

Correct. Thanks for your reply! My NET team is not recommending a EUS biopsy for my...

https://connect.mayoclinic.org/comment/905588/

Discussion: 1.7 cm Pnet recently found. Is a biopsy pretty standard protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

Comment

I have a pNET. I have never taken creon. I was on CAPTEM for 12 months...

https://connect.mayoclinic.org/comment/950937/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2023

Comment

I found out the PNET (pancreatic neuroendocrine tumor) on the head of my pancreas last year...

https://connect.mayoclinic.org/comment/1001655/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2024

Comment

I have been on Lanreotide ( every 4 weeks) for 2+ yrs now for pNET with...

https://connect.mayoclinic.org/comment/1279952/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

I have a PNET which showed up on a GA68 DOTATATE PET. I now have a...

https://connect.mayoclinic.org/comment/911927/

Discussion: FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Comment

The lanreotide injections did not do what the oncologist had hoped for my sister. They are...

https://connect.mayoclinic.org/comment/1098968/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2024

Comment

I have Pnet with 23 tumors on my liver, and else where. They are looking at...

https://connect.mayoclinic.org/comment/712279/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2022

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