Neuroendocrine Tumors (NETs) Support Group

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...

I have recently been diagnosed with the Differentiated Adenocarcinoma with Neuroendocrine Differentiations in the Gallbladder, Liver, and parts of right and left Abdomen. I have...

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...

I am interested in hearing people’s experiences with cabozantinib. I was diagnosed January 2020, grade 3, well-differentiated, unknown primary with tumors in liver, pancreas, lungs,...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

Good morning.I mentioned a while back that I was diagnosed with Malignant Neuroendocrine of the Lungs and have been undergoing Sandostatin LAR 30 mg/28 days...