Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

372 total results

Comment

@mdethardt Welcome to Mayo Connect. I can't disagree with your logic. I have a pnet that...

https://connect.mayoclinic.org/comment/1356508/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Comment

@djchambers Can anyone provide side effects they experienced from CAPTEM treatment? I was told complete hair...

https://connect.mayoclinic.org/comment/1511203/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 11:37am

Comment

@lindabees hi my sis hv stage 4 grade 3 PNET ,Liver modules.Captem doesn't work.did etopside and...

https://connect.mayoclinic.org/comment/1410555/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

My CgA is extremely high however my oncologist and gastrointestinal doctors are not concerned. Reason- there...

https://connect.mayoclinic.org/comment/1345098/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

Comment

The staging system most often used for pNETs is the American Joint Committee on Cancer (AJCC)...

https://connect.mayoclinic.org/comment/1364437/

Discussion: What is staging for pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2025

Comment

I have a 1.7cm Pnet that was found on tail about 4 months ago. At this...

https://connect.mayoclinic.org/comment/903839/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

Thank you Lindabees! Our emotions are all over the place right now. I hope there is...

https://connect.mayoclinic.org/comment/1206203/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2025

Comment

My hematologist is the one who diagnosed my PNET due to extremely low platelet count. She...

https://connect.mayoclinic.org/comment/1049783/

Discussion: Anyone had a trend of their platelets going too low? What action?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Comment

Hi @rginvictus, I add my welcome along with @stevm and @jolo24. I added your question to...

https://connect.mayoclinic.org/comment/1035921/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

Comment

@cindypat1 Sorry to hear about that. Fortunately, the lure of big profits have encouraged drug companies...

https://connect.mayoclinic.org/comment/1519739/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 4:56pm

Digestive Health

Follow

17968

54 minutes ago

Follow

8016

3 hours ago

Follow

9847

6 hours ago

Visiting Mayo Clinic

Follow

6633

6 hours ago

Follow

886

6 hours ago