Support Groups

Neuroendocrine Tumors (NETs) Support Group

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2,235 total results
Discussion
Anyone had a large NET in the liver? What treatment did you have?
Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?
Last active: Jan 20 9:27am
Discussion
Should NET w/liver met patient stop rx that has Seratonin?
I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...
Last active: Jul 27 7:26pm
Discussion
Wondering if we are making the right choices in our NET fight.
I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....
Last active: Dec 28, 2024
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28, 2024
Discussion
Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
Last active: Aug 6 7:30pm
Discussion
Stopping Octreotide???
My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...
Last active: Nov 11, 2024
Discussion
Questions for surgeon-considerations choosing PRRT or surgery
I am considering surgery for neuroendocrine tumors metastatic to the liver. I have about 6-7 tumors that are visible on MRI. One surgeon told me...
Last active: Sep 1 3:46pm
Discussion
Surgery on Small Intestine
Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...
Last active: Aug 15 10:53am
Discussion
How to get a second opinion for an international patient??
Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...
Last active: May 10, 2021