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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Should NET w/liver met patient stop rx that has Seratonin?
I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...
Last active: Dec 16, 2025
Discussion
Extreme swelling
My husband has significant liver tumors. Almost 80% disease in liver. He is currently being treated in GA, but we live in south AL. He...
Last active: 15 hours ago
Discussion
What are the latest developments in Zanzalintinib (311) with LANREOTID
What are the latest developments in Zanzalintinib (311) with LANREOTIDE ACETATE (4-week cycle) in treating pNET high grade 3 metastatic in liver for over 2...
Last active: Mar 17 8:57pm
Discussion
Wondering if we are making the right choices in our NET fight.
I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....
Last active: Dec 28, 2024
Discussion
New spots showing up
Just an update….I am 72 years old with stage 4 grade 2 neuroendocrine cancer (functional but no symptoms ). Primary in my small intestine with...
Last active: Mar 16 6:25pm
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28, 2024
Discussion
Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
Last active: Aug 6, 2025
Discussion
Stopping Octreotide???
My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...
Last active: Nov 11, 2024
Discussion
Siewert type 2 Gastroesophageal adenocarcinoma
I was first diagnosed on July 11, 2024 with Siewert type 2 Gastroesophageal Adenocarcinoma. I had a pet scan in Sept of the same year...
Support Group: Esophageal Cancer
Last active: Dec 20, 2025