Neuroendocrine Tumors (NETs) Support Group

I have read that MRI's provide better imaging for liver. Wondering what three month follow up imaging people are having for metastatic liver neuroendocrine tumors.

I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...

I have metastatic neuroendocrine tumors in the liver with no known origin diagnosed in Sept 2024 grade 2 KI-67 6-8% well differentiated non functioning. Been...

Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?

Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...

I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...