Neuroendocrine Tumors (NETs) Support Group

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

Hi, I hope all are feeling well. For the past yr I have been undergoing many tests. 24 hr Urine positive in small bowel, Gallium...

Good morning! Yesterday I had a meeting with my oncologist to discuss the data from my last CT scan. I have been moved from scans...

I was told yesterday that my NET has spread to my spine L1 and my periportal lymph node I did Lanreotide and Ocreotide injections for...

In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...

I was diagnosed in ‘21 (51 y/o) with SB net and metastatic tumor in the mesentery lymph nodes. All successfully resected. The metastasis in mesentery...

My precious wife of 39 years has grade 3 NET in her liver and pancreas (also in the ileum that was removed). She is receiving...

Started Everolimus for pancreatic Neuroendocrine cancer with Mets to liver and bone diagnosed four years ago. Was 49 when diagnosed. Had TACEx4, IV radiation(PRRT) x4,...

Hello. I’m thinking this may have been discussed before. Sorry if I’m asking an old question Is everyone with a pNET on Creon. Pancreatic enzymes...