Neuroendocrine Tumors (NETs) Support Group

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Comment

61 yr old patient, liver mets after 7 months of whipples. Now under chemo. Not able...

https://connect.mayoclinic.org/comment/1062766/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5 3:25pm

Comment

Interesting. I am on my second cancer - fist lung five years ago, now liver. Now...

https://connect.mayoclinic.org/comment/232728/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Hello @siluka and welcome to Mayo Connect. Your concern about the CgA levels and the lesions...

https://connect.mayoclinic.org/comment/1064999/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9 3:54pm

Comment

and the CT that local reading identified a new liver met, but Mayo review of that...

https://connect.mayoclinic.org/comment/1117858/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4 4:55pm

Comment

It is funny. That is the final scan I got for the oncologist to tell me...

https://connect.mayoclinic.org/comment/833905/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

I had abdominal pain for a year . Had CT’S , ultrasounds done , all negative....

https://connect.mayoclinic.org/comment/877887/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Comment

Eating well but have lost around 12 pounds since start of Ocerotide in April. In retrospect...

https://connect.mayoclinic.org/comment/720098/

Discussion: New to NETs: Found lesions on liver during a health check

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2022

Comment

I also have stage 4 Neuroendocrine in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Comment

I have an unknown primary mine has spread to my liver spine and ribs I have...

https://connect.mayoclinic.org/comment/980862/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

Comment

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

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