Neuroendocrine Tumors (NETs) Support Group

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Hello @juandixon It has been a few weeks since your last post and I was wondering...

https://connect.mayoclinic.org/comment/814192/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

Hello @maryluph1953 I see that you are in the process of treatment for Merkel Cell Carcinoma...

https://connect.mayoclinic.org/comment/1155843/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 12, 2024

Comment

My husband has Net that metastasized to his liver. We started at MGH but are currently...

https://connect.mayoclinic.org/comment/884054/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

I have been on Lanreotide ( every 4 weeks) for 2+ yrs now for pNET with...

https://connect.mayoclinic.org/comment/1279952/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

@kc43 how interesting that the initials in your mayo name of @kc43, is the exact initials...

https://connect.mayoclinic.org/comment/1110663/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024

Comment

I believe they were all supposed to shrink both source and liver tumors. The source tumor...

https://connect.mayoclinic.org/comment/1356794/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2025

Comment

Actually he had already had his pancreatic primary removed by a net specialist surgeon at Stanford....

https://connect.mayoclinic.org/comment/1338518/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

Comment

Yes...mine were found in the lesser curve of My stomach. My Gastroenterologist wants to check my...

https://connect.mayoclinic.org/comment/872777/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Comment

I had surgery (Whipple) to remove a functioning NET from the head of my Pancreas after...

https://connect.mayoclinic.org/comment/773459/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2022

Comment

I had a very small carcinoid tumor removed in 2015 on my first colonoscopy that was...

https://connect.mayoclinic.org/comment/1146694/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

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