Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @gmapam and welcome to the NETs support group on Mayo Connect. As @californiazebra said, it...

https://connect.mayoclinic.org/comment/884254/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

i’ve done “watch and wait” for numerous “growth” conditions on internal organs. i’ve been fortunate that...

https://connect.mayoclinic.org/comment/1067016/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

Comment

@jeanadair- Good morning. I am so glad that you wrote back. It's quite something, isn't it...

https://connect.mayoclinic.org/comment/232709/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Mark, sorry to hear about the progression and all you’re going through. My brother had lung...

https://connect.mayoclinic.org/comment/1410645/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

Hello, I was diagnosed a year ago with NET in my left lung. I had surgery...

https://connect.mayoclinic.org/comment/1231241/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

@merpreb Thank you for the above response. It does help. I am learning to take things...

https://connect.mayoclinic.org/comment/232933/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 4, 2019

Comment

I was diagnosed with this rare condition 6 years ago . I had a persistent cough...

https://connect.mayoclinic.org/comment/775955/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

@ggiinnaa I've asked my lung nurse can typical carcinoid turn atypical she said no she said...

https://connect.mayoclinic.org/comment/1440975/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2025

Comment

@californiazebra @nannybb @jessie1990 I just got off a Mayo NETs support group call. A lady was...

https://connect.mayoclinic.org/comment/1432500/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Comment

Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...

https://connect.mayoclinic.org/comment/861009/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

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