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Discussions (69)
Comments (699)
Comment
I think you hit the nail on the head with the workaround. That being said, I...
https://connect.mayoclinic.org/comment/1126890/
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Discussion:
Lanreotide eventually becomes less effective, why?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 19, 2024
Comment
Thank you, and yes, I will try to update. I am not near Mayo, but I...
https://connect.mayoclinic.org/comment/1108927/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
Good morning The surgeon has very straightforward and honest. He said that surgery is the best...
https://connect.mayoclinic.org/comment/913416/
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Discussion:
How do I know somatostatin is in my system?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
Comment
Wow hats off to you on your journey what an experience you learned from and handled...
https://connect.mayoclinic.org/comment/821372/
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Discussion:
NETs: Competing Pathologies--how to sort it all out?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 5, 2023
Comment
In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...
https://connect.mayoclinic.org/comment/815722/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22, 2023
Comment
Sakota- Multifocal is a category of lung cancer that since 1960 was a redefined bronchioloalveolar carcinoma...
https://connect.mayoclinic.org/comment/232727/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Dec 8, 2018
Comment
Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
https://connect.mayoclinic.org/comment/1172492/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2024
Comment
I think histotripsy is pretty exciting. Watch the videos on it. Yes, it was just approved...
https://connect.mayoclinic.org/comment/949922/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 18, 2023
Comment
Hi @cmc188 I have 50+ lung NETs tumors across both lungs. I also have DIPNECH (really...
https://connect.mayoclinic.org/comment/1199984/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 29, 2024
Comment
Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...
https://connect.mayoclinic.org/comment/311779/
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Discussion:
Afinitor - Anyone have pneumonitis as a side effect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 22, 2020
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