Neuroendocrine Tumors (NETs) Support Group

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Comment

Not sure about pain never really had any and have the same thing. I do have...

https://connect.mayoclinic.org/comment/927920/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2023

Comment

Good morning, I was diagnoses with Stage 4 NET's in December 2022 primary in small intestines...

https://connect.mayoclinic.org/comment/1476398/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 7:59am

Comment

Did you do bland embolization? Did you try Lanreotide? I heard that there is a clinical...

https://connect.mayoclinic.org/comment/1037516/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2024

Comment

Hello, Michelle! Good luck on your scans! I am approaching my surgery's first anniversary. Have been...

https://connect.mayoclinic.org/comment/1005058/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2024

Comment

Same here - PNET grade 2, Stage 4. Had surgery for removal of pancreatic tail, spleen,...

https://connect.mayoclinic.org/comment/922881/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2023

Comment

My experience is similar to Caitlin’s, I’ve had 3 treatments at Mayo with the 4th in...

https://connect.mayoclinic.org/comment/806802/

Discussion: Recurrence with Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Yes. I was on immunotherapy for almost a year and my last pet scan showed only...

https://connect.mayoclinic.org/comment/1215480/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2025

Comment

16 Tumors were discovered on my liver December 2022. Started on Lanreotide for 3 months, switched...

https://connect.mayoclinic.org/comment/1111382/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

I have been on this journey for a short time, so I am not qualified to...

https://connect.mayoclinic.org/comment/933961/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

Comment

I’d like support last round suggestions, as my wife also had too many tumors to count...

https://connect.mayoclinic.org/comment/874754/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

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