Neuroendocrine Tumors (NETs) Support Group

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Comment

I have multiple liver lessions too that have different characteristics, I’m not comfortable about it especially...

https://connect.mayoclinic.org/comment/829662/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

I was diagnosed in 2019 with NETS of the liver my tumors were extremely large and...

https://connect.mayoclinic.org/comment/1148532/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28 8:04am

Comment

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 1:48pm

Comment

The oncologist feels that the Zometa will strengthen the areas in my spine and pelvis. One...

https://connect.mayoclinic.org/comment/1143611/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 3:39pm

Comment

I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid...

https://connect.mayoclinic.org/comment/85558/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Comment

I totally agree with what you are saying! My liver enzymes (ALT, AST) are almost double...

https://connect.mayoclinic.org/comment/1009304/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 8:59am

Comment

I had surgery in 2018 for t-10 lesion but since have had cyberknife on additional spine...

https://connect.mayoclinic.org/comment/952169/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Comment

I am in Australia and waiting to see what the next step for me (lesion liver)...

https://connect.mayoclinic.org/comment/1089295/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 3:39pm

Comment

I have pancreas to liver NET. The chemotherapy drug I was on was Flofox and a...

https://connect.mayoclinic.org/comment/825587/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

Comment

That is great news Diane, I won’t know anything more until I have a biopsy in...

https://connect.mayoclinic.org/comment/664858/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

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