Neuroendocrine Tumors (NETs) Support Group

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Comment

@helloitsme , Hi! I have pancreaticNET with liver metastases, I am on Lanreotide after surgery for...

https://connect.mayoclinic.org/comment/938587/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Comment

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

I have been on Lanreotide injections since March 2023. I have Stage 4 pNET with liver...

https://connect.mayoclinic.org/comment/899254/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Good morning. I see Dr. Jason Starr at Mayo Jacksonville, Fl. In the last two years,...

https://connect.mayoclinic.org/comment/271257/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2019

Comment

@mdmarquardt the octreotide really took my appetite away the first year or so. I'm still not...

https://connect.mayoclinic.org/comment/937832/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Comment

On 4 July 2023 I was diagnosed with stage 4 pNET. I had a Whipple on...

https://connect.mayoclinic.org/comment/1345077/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

Comment

So optimistic about this treatment modality! I have two questions. Has this treatment been successful on...

https://connect.mayoclinic.org/comment/1192687/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 18, 2024

Comment

I'm am 56yrs old with liver NETs metastatic as well. Ki-67 is 4, well differentiated as...

https://connect.mayoclinic.org/comment/1167298/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2024

Comment

Not sure about pain never really had any and have the same thing. I do have...

https://connect.mayoclinic.org/comment/927920/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2023

Comment

I have been on Lanreotide for 14 months after pNET with liver metastases. Right after surgery...

https://connect.mayoclinic.org/comment/1070331/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18, 2024

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