Neuroendocrine Tumors (NETs) Support Group

My partner is grade 2, stage 4 PNET diagnosed Jan 28 2025 and post start of lanreotide (3 months) showed growth still. Starting PRRT shortly....

My 29 son has a grade 3 PNET and Liver METS. He receives monthly Lanrotide which causes wild blood sugar highs and rapid lows. He...

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I have a well defined NF 1.7cm PNET in the body and a 6mm tumor (not biospied) in the tail of the pancreas. PET scan...

I am currently preparing to begin Lutathera at Mayo in Jacksonville after showing progression while on Clinical trial CAM2029 octreotide. Fully terrorized as what to...

I’m an international student on student visa in Australia, 35 years old diagnosed of PNet.., my hospital won’t confirm my booking for planned surgery in...

I am new to this group and thankful for the insight offered by those who post their experiences. I am a 68 year old man...

Hi. Age 51. Diagnosed with Scleroderma, Lupus and Raynaud’s 20 yrs ago. Had a Bronchial Carcinoid removed in ‘07. A routine Gallo scan in ‘19...

Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...

Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...