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2,241 total results
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Discussions (189)
Comments (2,052)
Comment
I appreciate Your follow up. Unfortunately I was disregarded by the oncologist, the only thing that...
https://connect.mayoclinic.org/comment/807767/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7, 2023
Comment
Thank you and we feel the same way. Why not monitor at this point. She feels...
https://connect.mayoclinic.org/comment/1111437/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25, 2024
Comment
@t26 My wife had very similar surgery as you. Mass on pancreas was removed, tail of...
https://connect.mayoclinic.org/comment/834063/
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Discussion:
Anyone have surgery for metastatic PNET done in stages?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29, 2023
Comment
In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...
https://connect.mayoclinic.org/comment/813633/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
Comment
We are a year and half into our journey in living with NET. I can’t remember...
https://connect.mayoclinic.org/comment/932424/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 19, 2023
Comment
ki67 20% is borderline grade 3 (like my condition) so that will make it more aggressive...
https://connect.mayoclinic.org/comment/1394494/
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Discussion:
Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 4 days ago
Comment
In rare circumstances (oligometastatic PDAC), we would consider aggressive treatment of metastatic liver disease after a...
https://connect.mayoclinic.org/comment/1315785/
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Discussion:
Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29
Support Group:
Pancreatic Cancer
Posted: May 29 12:38pm
Comment
When I first got diagnosed with a pnet that spread to my liver, I had ascites....
https://connect.mayoclinic.org/comment/1191660/
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Discussion:
Anyone have experience with Acites?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 16, 2024
Comment
Stable is good! It does not mean a cure however it gives us a break physically...
https://connect.mayoclinic.org/comment/1337831/
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Discussion:
Liver and Pancreas Stable
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 29 1:17pm
Comment
My brother was on a clinical trial using cabozantinib and nivolumab. Unfortunately, he had a lot...
https://connect.mayoclinic.org/comment/877316/
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Discussion:
Anyone have experience with cabozantinib (Cabometyx)?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 12, 2023
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