Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi Margaret, every year my husband has a Dototate (sp?) PET scan. It is a more...

https://connect.mayoclinic.org/comment/764697/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

Comment

In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2025

Comment

Hello @avawein I know you were scheduled for liver surgery on 10/21. I hope that all...

https://connect.mayoclinic.org/comment/647730/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2021

Comment

My husband had y90 for a 50% liver tumor burden 15 years ago. It was wildly...

https://connect.mayoclinic.org/comment/1335437/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2025

Comment

I have a NET but what’s a pNET? I have liver metastasis too. Could you tell...

https://connect.mayoclinic.org/comment/1071566/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Comment

I had chemo I am grade 2 ki-67 7% stage 4 to liver as far as...

https://connect.mayoclinic.org/comment/1290666/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2025

Comment

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

@pipo It's a long list. Distal Pancreatectomy Y90 to both lobes of liver Octreotide/Lanreotide Cyberknife to...

https://connect.mayoclinic.org/comment/1407713/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2025

Comment

iam doing ok. but i have lots of diarrhea. liver is swollen, very fatigue. The oncologist...

https://connect.mayoclinic.org/comment/1038396/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Comment

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

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