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1,626 total results
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Discussions (128)
Comments (1,498)
Comment
Family member recent diagnosis of NETS in ileum, lymph node, and liver. Awaiting removal surgery. First...
https://connect.mayoclinic.org/comment/914810/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 17, 2023
Comment
I had one in my colon 12 yrs and surgery ago now in the breast surgery...
https://connect.mayoclinic.org/comment/945075/
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Discussion:
Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 9, 2023
Comment
I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this...
https://connect.mayoclinic.org/comment/847070/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2023
Comment
This is a great news! Looks like Lanreotide is keeping the growth in check! I just...
https://connect.mayoclinic.org/comment/937359/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 27, 2023
Comment
I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...
https://connect.mayoclinic.org/comment/1017449/
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Discussion:
I have 3 nueroendocrine tumors in my left lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 17 12:10pm
Comment
No on bland embolization, did not try lanretide, been on octreotide for 1 yr. had 4...
https://connect.mayoclinic.org/comment/1037570/
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Discussion:
Treatment for GI NET with liver mets not working: Options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 21 8:00am
Comment
I did the watch and wait for a small (1cm) PNET on the head of my...
https://connect.mayoclinic.org/comment/815227/
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Discussion:
Cough ! What could it be?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 21, 2023
Comment
Hello @tomatlanta, I appreciate you sharing about your wife's journey with a NETs diagnosis. Everyone's journey...
https://connect.mayoclinic.org/comment/877795/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 13, 2023
Comment
Hello, I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no...
https://connect.mayoclinic.org/comment/942546/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 5, 2023
Comment
Links, Sounds like you have what I have. Mine started in my Pancreas and is in...
https://connect.mayoclinic.org/comment/807256/
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Discussion:
Pancreatic neuroendocrine insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
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