Neuroendocrine Tumors (NETs) Support Group

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Comment

You just need one NETs team as the two conditions are related. You’ll treat them at...

https://connect.mayoclinic.org/comment/1410880/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

I had Octreotide in the hospital for almost two weeks. And it sounds like I maybe...

https://connect.mayoclinic.org/comment/1340935/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2025

Comment

Hopeful. I was diagnosed with Islet Cell Cancer, a neuroendricine adenoma carcinoma back in July of...

https://connect.mayoclinic.org/comment/90122/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2016

Comment

I would recommend checking out Memorial Sloan Kettering in NYC as I think they have state...

https://connect.mayoclinic.org/comment/879794/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...

https://connect.mayoclinic.org/comment/772200/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2022

Comment

I coughed all day every day for 30 years. Annoying to me and everyone around me....

https://connect.mayoclinic.org/comment/1329447/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

I also have Nets on my Pancreas and only receiving Octreotide injections every two weeks for...

https://connect.mayoclinic.org/comment/1409154/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Comment

Hi! My cancer has also metastasized to my liver and I get Octreotide injections every month...

https://connect.mayoclinic.org/comment/1196332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

I think you hit the nail on the head with the workaround. That being said, I...

https://connect.mayoclinic.org/comment/1126890/

Discussion: Lanreotide eventually becomes less effective, why?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2024

Comment

PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the...

https://connect.mayoclinic.org/comment/1374576/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2025

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