Neuroendocrine Tumors (NETs) Support Group

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Comment

I had an outpatient peek & see exploratory so NET surgeon could see what he was...

https://connect.mayoclinic.org/comment/1433287/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Comment

You just need one NETs team as the two conditions are related. You’ll treat them at...

https://connect.mayoclinic.org/comment/1410880/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

I had Octreotide in the hospital for almost two weeks. And it sounds like I maybe...

https://connect.mayoclinic.org/comment/1340935/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2025

Comment

I would recommend checking out Memorial Sloan Kettering in NYC as I think they have state...

https://connect.mayoclinic.org/comment/879794/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...

https://connect.mayoclinic.org/comment/772200/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2022

Comment

I coughed all day every day for 30 years. Annoying to me and everyone around me....

https://connect.mayoclinic.org/comment/1329447/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

I also have Nets on my Pancreas and only receiving Octreotide injections every two weeks for...

https://connect.mayoclinic.org/comment/1409154/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Comment

Hi! My cancer has also metastasized to my liver and I get Octreotide injections every month...

https://connect.mayoclinic.org/comment/1196332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

I think you hit the nail on the head with the workaround. That being said, I...

https://connect.mayoclinic.org/comment/1126890/

Discussion: Lanreotide eventually becomes less effective, why?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2024

Comment

@hopeful33250 @ahtaylor @joannem @tomewilson It’s nice to meet everyone. I will be happy to connect with...

https://connect.mayoclinic.org/comment/134544/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

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