Neuroendocrine Tumors (NETs) Support Group

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Comment

@cu2 I just started Lanreotide. My first injection this morning. Barely made the 20 min ride...

https://connect.mayoclinic.org/comment/825586/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

Comment

I've been told by Oncologist they are working on oral versions of Octreotide and Lanreotide. But...

https://connect.mayoclinic.org/comment/1334042/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

Lanreotide 120 mg injection’s are treatment for NET patients. I have received them every 28 days...

https://connect.mayoclinic.org/comment/1229012/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2025

Comment

My wife was given lanreotide injections for many years. After encountering the same lump issue as...

https://connect.mayoclinic.org/comment/826801/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

You are on the right track by finding NET specialist! Relax, and give him your support!...

https://connect.mayoclinic.org/comment/1291405/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27, 2025

Comment

Greetings. I am a newbee and just joined. I have a lung carcinoid. Actually there are...

https://connect.mayoclinic.org/comment/134267/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2018

Comment

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Comment

Mostly well. I go to Moffitt in Tampa every 8 months for my check and MRI...

https://connect.mayoclinic.org/comment/1218131/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2025

Comment

I've stopped the lanreotide and am restarting the immunotherapy. My dr told me we would know...

https://connect.mayoclinic.org/comment/1214885/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2025

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