Neuroendocrine Tumors (NETs) Support Group

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Comment

Thanks for sharing your story. My doctor told me good chance my next one would probably...

https://connect.mayoclinic.org/comment/1236677/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2025

Comment

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2025

Comment

The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping...

https://connect.mayoclinic.org/comment/1055461/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...

https://connect.mayoclinic.org/comment/836139/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Comment

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

@gangcarotid1 my primary is in my pancreas and spread primarily to my liver. I also have...

https://connect.mayoclinic.org/comment/1411076/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2025

Comment

My husband just had esophageal cancer identified after a CT scan due to a car accident....

https://connect.mayoclinic.org/comment/1455605/

Discussion: Siewert type 2 Gastroesophageal adenocarcinoma

Support Group: Esophageal Cancer

Posted: Dec 7, 2025

Comment

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Hello, how long since you were originally diagnosed with NETs? I am trying to determine what...

https://connect.mayoclinic.org/comment/952977/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

Hello..I am 29 yr old boy from India diagoned with net tumor in small bowel and...

https://connect.mayoclinic.org/comment/786092/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

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