Neuroendocrine Tumors (NETs) Support Group

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Comment

I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

I will be having robotic surgery on July 11 to have the NETs cancer removed from...

https://connect.mayoclinic.org/comment/1079515/

Discussion: Altitude change after lung biopsy/bronchoscopy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2024

Comment

See comments by annj as I also had my left lower lung removed due to a...

https://connect.mayoclinic.org/comment/1061396/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Comment

I have lung NETs with tumor on my left lobe and mediastinum. With this I have...

https://connect.mayoclinic.org/comment/845043/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Hello, @hopeful33250. Yes, this is my first carcinoid tumor and I have sought a second opinion...

https://connect.mayoclinic.org/comment/657531/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Comment

Hello @1peg and welcome to the NETs support group on Mayo Connect. Connect is a good...

https://connect.mayoclinic.org/comment/1262844/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 3:52pm

Comment

No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in...

https://connect.mayoclinic.org/comment/1198235/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes....

https://connect.mayoclinic.org/comment/1025524/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

My recent 6 month CT scan showed a 7 mm pancreatic cyst that looks like a...

https://connect.mayoclinic.org/comment/953372/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...

https://connect.mayoclinic.org/comment/965599/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

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