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Discussions (74)
Comments (723)
Comment
Thank you for sharing your story. I hope your doctors can find a way to help...
https://connect.mayoclinic.org/comment/1198940/
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Discussion:
Any advice for someone recently diagnosed with NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2024
Comment
I am a lung cancer survivor. I was lucky my PCP ordered a CT scan just...
https://connect.mayoclinic.org/comment/1062273/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2024
Comment
@hopeful33250 Thanks for the reply! I guess the Pulmonologist at Mayo presented my case at the...
https://connect.mayoclinic.org/comment/271271/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 1, 2020
Comment
Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...
https://connect.mayoclinic.org/comment/906758/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 3, 2023
Comment
Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...
https://connect.mayoclinic.org/comment/842248/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12, 2023
Comment
Thanks. The reason that they aren’t removing them without a biopsy is that if they are...
https://connect.mayoclinic.org/comment/232959/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Jul 7, 2019
Comment
Hello- I have a carcinoid nodule in my lower left lobe it measures 2.3 cm by...
https://connect.mayoclinic.org/comment/1076510/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 28, 2024
Comment
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2023
Comment
I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...
https://connect.mayoclinic.org/comment/806203/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2023
Comment
I'm on the path to getting the help. Lung biopsy and pancreatic biopsy. Will have more...
https://connect.mayoclinic.org/comment/979680/
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Discussion:
NET symptoms despite follow-up lab work ok
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 13, 2023
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