Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi. I can relate... I have inoperable stage 3B large cell neuroendocrine lung cancer currently in...

https://connect.mayoclinic.org/comment/1464053/

Discussion: 1 yr 9 months post upper left lobectomy, shortness of breath

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 19, 2025

Comment

Thank you for your insight about taking Prozac. I too am contemplating taking it for help...

https://connect.mayoclinic.org/comment/232888/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 21, 2019

Comment

Hello @californiazebra, I really appreciate the chronology that you provided as you have been dealing with...

https://connect.mayoclinic.org/comment/1179350/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Comment

Did he have a molecular study to determine its biomarkers done on the biopsy? I did...

https://connect.mayoclinic.org/comment/1383021/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2025

Comment

I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...

https://connect.mayoclinic.org/comment/1250339/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2025

Comment

@nannybb oh my word!!!! I am sending love during this difficult period. I do not know...

https://connect.mayoclinic.org/comment/1438650/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

Comment

@californiazebra I don't think mine every healed because when doc was removing half of tumor he...

https://connect.mayoclinic.org/comment/1435973/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

Comment

@rogo, we share a few similarities. I've also been incorrectly diagnosed with asthma for over 30...

https://connect.mayoclinic.org/comment/1268878/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Comment

Hello jlsgt, Thank you for taking the time to reply. I certainly am feeling like the...

https://connect.mayoclinic.org/comment/1219737/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2025

Comment

That's amazing ! I feel very blessed an encouraged by this,The largest nodule in my lung...

https://connect.mayoclinic.org/comment/1330481/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2025

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