Neuroendocrine Tumors (NETs) Support Group

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Hello @bluedane Thank you so much for your input! They never did biopsy from her lung,...

https://connect.mayoclinic.org/comment/826555/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Comment

I had explosive diarrhea also not a fun thing to deal with! I get the lanreotide...

https://connect.mayoclinic.org/comment/1287554/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

@briana311 You are right tired goes with everything we do. I also did not respond to...

https://connect.mayoclinic.org/comment/1511661/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 3:27am

Comment

The liver is where it has started; as a result of a scan and a biopsy....

https://connect.mayoclinic.org/comment/267669/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2019

Comment

@tomrennie I've had 2 biopys pet scan liver mri ct scan xray and pulmonary function test...

https://connect.mayoclinic.org/comment/1432646/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Comment

That’s great news. I also have multiple tumors on my liver..I had my first treatment of...

https://connect.mayoclinic.org/comment/1194080/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

Hi, PNet is one that starts in the pancreas then spreads to other parts like the...

https://connect.mayoclinic.org/comment/1071577/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Comment

A convincing announcement and animation of Histotripsy and liver cancer at the Univ of Chigo online....

https://connect.mayoclinic.org/comment/1023927/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

Comment

They suspect my brother may have some but haven't done anything for them yet, as I...

https://connect.mayoclinic.org/comment/877312/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....

https://connect.mayoclinic.org/comment/998435/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

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