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2,242 total results
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Discussions (189)
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Comment
Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...
https://connect.mayoclinic.org/comment/941333/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 3, 2023
Comment
I was diagnosed in April 2025 after months of diarrhea and heartburn, 2x colonoscopy/endoscopy, and a...
https://connect.mayoclinic.org/comment/1393584/
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Discussion:
Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 5 days ago
Comment
I was diagnosed with NETS WITH METASTASIS to my liver. I had a transplant. It was...
https://connect.mayoclinic.org/comment/949270/
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Discussion:
Liver Transplant to Treat NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 17, 2023
Comment
It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...
https://connect.mayoclinic.org/comment/847119/
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Discussion:
Who has had Distal Pancreatectomy and regretted it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2023
Comment
Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...
https://connect.mayoclinic.org/comment/780507/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 3, 2022
Comment
Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...
https://connect.mayoclinic.org/comment/748820/
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Discussion:
Liver mets mistaken as hemangioma or harmatoma on MRI
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 12, 2022
Comment
My embolization was January 12, 2023 It took me about a month to truly recover After...
https://connect.mayoclinic.org/comment/829069/
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Discussion:
Bland embolization or transarterial chemoembolization (TACE)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 20, 2023
Comment
MRI about every 4 months, eating is going too well. Thus the increased severity of Fatty...
https://connect.mayoclinic.org/comment/1203376/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 3 7:54pm
Comment
She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...
https://connect.mayoclinic.org/comment/934866/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 23, 2023
Comment
Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...
https://connect.mayoclinic.org/comment/881873/
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Discussion:
Post Lu177 PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 20, 2023
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