Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with nets in April of 2020. The nets were in my right lung....

https://connect.mayoclinic.org/comment/1269123/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 7:04am

Comment

Hi - I’m new here. But I saw your question. I was diagnosed this summer with...

https://connect.mayoclinic.org/comment/974003/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2023

Comment

@markmark007 I take octreotide injections for lung NETS and DIPNECH. My 50+ lung tumors are very...

https://connect.mayoclinic.org/comment/966952/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Comment

I am praying for you and your boyfriend. Cancer can be scary. I pray that the...

https://connect.mayoclinic.org/comment/284805/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 26, 2019

Comment

@jball77 You might consider messaging your surgeon through the patient portal to see if breathing exercises...

https://connect.mayoclinic.org/comment/1057641/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2024

Comment

Thanks…. My diagnosis was Large Cell lung NETs, I was told it was more aggressive than...

https://connect.mayoclinic.org/comment/897051/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

Please see questions in string below. I think some may have ventured off and begun answering...

https://connect.mayoclinic.org/comment/1316236/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 30 6:44am

Comment

@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...

https://connect.mayoclinic.org/comment/861008/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

Comment

Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by...

https://connect.mayoclinic.org/comment/1288532/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 10:55pm

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