Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @wdd18054 I appreciate your post. I am Teresa and a volunteer mentor with Connect. I...

https://connect.mayoclinic.org/comment/186230/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2018

Comment

I’m living with net as well, pancreas which has metastasized to my liver. Discovered about 5years...

https://connect.mayoclinic.org/comment/1252221/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 5:50am

Comment

I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on...

https://connect.mayoclinic.org/comment/1286484/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 7:38am

Comment

Is the Joe Tippens protocol for neuroendocrine cancer? It looked like it was for pancreatic cancer.....

https://connect.mayoclinic.org/comment/1289433/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 8:25am

Comment

Hi Kevin, finally I come across someone with functional gastrinoma that I can consult or share....

https://connect.mayoclinic.org/comment/1283715/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 5:05am

Comment

My sister was diagnosed with a well differentiated Pancreatic Neuroendocrine tumor Grade 3 Stage 4. It...

https://connect.mayoclinic.org/comment/1105243/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2024

Comment

Thanks for your post. Can you tell me how old your wife is please? I had...

https://connect.mayoclinic.org/comment/1075303/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Comment

My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...

https://connect.mayoclinic.org/comment/1061064/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Comment

Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this...

https://connect.mayoclinic.org/comment/953639/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Comment

Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...

https://connect.mayoclinic.org/comment/908363/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2023

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