Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi! I’m so sorry to hear about your husband’s diagnosis. I believe in asking as many...

https://connect.mayoclinic.org/comment/1201611/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1 9:10am

Comment

Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...

https://connect.mayoclinic.org/comment/834726/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

Comment

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Hello, Thanks for your reply and the invitation to attend the Support Group zoom meeting. Yes,...

https://connect.mayoclinic.org/comment/672203/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2022

Comment

I coughed all day every day for 30 years. Annoying to me and everyone around me....

https://connect.mayoclinic.org/comment/1329447/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 7:08pm

Comment

Because of the possibility of carcinoid crisis due to epinephrine, I decided to wear a medical...

https://connect.mayoclinic.org/comment/137534/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Comment

I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...

https://connect.mayoclinic.org/comment/1205143/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 6 9:07am

Comment

Yes! Sorry you're so sick! Are you even sure it's from the NETs and not a...

https://connect.mayoclinic.org/comment/888985/

Discussion: Should I go to the ER? I’m sicker than I’ve ever been.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2023

Comment

Thanks for your update, @megansims. I am glad to hear that your symptoms have improved with...

https://connect.mayoclinic.org/comment/271269/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2019

Comment

I also concur with all of the above responses; I’m on year 3… Mine started as...

https://connect.mayoclinic.org/comment/1369496/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12 11:18pm

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