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2,239 total results
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Discussions (189)
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Comment
Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....
https://connect.mayoclinic.org/comment/998435/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 16, 2024
Comment
Diazoxide is only med prescribed to help hypoglycemia caused by endocrine tumors. If cornstarch worked they...
https://connect.mayoclinic.org/comment/934254/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 22, 2023
Comment
Hi Sandi You are a blessed person 19 year. Wow!!!! I was on lanreotide and had...
https://connect.mayoclinic.org/comment/746905/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 8, 2022
Comment
Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now...
https://connect.mayoclinic.org/comment/1038499/
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Discussion:
Treatment for GI NET with liver mets not working: Options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 22, 2024
Comment
That’s great news. I also have multiple tumors on my liver..I had my first treatment of...
https://connect.mayoclinic.org/comment/1194080/
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Discussion:
I recently learned of histotripsy treatment for metastatic NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 20, 2024
Comment
Hi, PNet is one that starts in the pancreas then spreads to other parts like the...
https://connect.mayoclinic.org/comment/1071577/
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Discussion:
pNET with liver metastases: What is necrosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 20, 2024
Comment
A convincing announcement and animation of Histotripsy and liver cancer at the Univ of Chigo online....
https://connect.mayoclinic.org/comment/1023927/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 27, 2024
Comment
They suspect my brother may have some but haven't done anything for them yet, as I...
https://connect.mayoclinic.org/comment/877312/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 12, 2023
Comment
Sorry to read about your circumstance. My NET is a Insulinoma, pancreas to liver, also too...
https://connect.mayoclinic.org/comment/874444/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 7, 2023
Comment
My pancreas had an 8x6cm tumor. My liver also had innumerable lesions with the largest being...
https://connect.mayoclinic.org/comment/1254696/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10 10:54am
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