Neuroendocrine Tumors (NETs) Support Group

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Comment

They did a pet scan right before surgery, and did not find any metastasis to my...

https://connect.mayoclinic.org/comment/902877/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

Comment

Surgery update: Kim had surgery today to remove remove remaining mass on pancreas, remove gall bladder,...

https://connect.mayoclinic.org/comment/819734/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

Our case also was stage 4 with too many tumors on liver to count. Not eligible...

https://connect.mayoclinic.org/comment/1106247/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 7:05pm

Comment

Hello @carcinoid and let me add my welcome to that of Colleens. I am sorry to...

https://connect.mayoclinic.org/comment/240130/

Discussion: Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2019

Comment

Hi Margaret, every year my husband has a Dototate (sp?) PET scan. It is a more...

https://connect.mayoclinic.org/comment/764697/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

Comment

One more thing I just want to note, I had NO symptoms. I had a hernia...

https://connect.mayoclinic.org/comment/805957/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

Comment

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Hi @gaylejean Since you posted about embolization in September and there were no responses, I was...

https://connect.mayoclinic.org/comment/217312/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2018

Comment

Hello @sophiarose, I certainly look forward to hearing from you again. Has your MRI of the...

https://connect.mayoclinic.org/comment/829494/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

iam doing ok. but i have lots of diarrhea. liver is swollen, very fatigue. The oncologist...

https://connect.mayoclinic.org/comment/1038396/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 2:18pm

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