Neuroendocrine Tumors (NETs) Support Group

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Comment

Must be. My pancreatic tumor and largest liver lesion started off around the same size 8x6cm....

https://connect.mayoclinic.org/comment/1356881/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 10:53am

Comment

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

Thank you everyone for your support I will be getting the liver embolization tomorrow I opted...

https://connect.mayoclinic.org/comment/795493/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Comment

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

To answer your question, yes if it spreads (metastasized) I have it in my liver, mesentery,...

https://connect.mayoclinic.org/comment/1238682/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 8:12pm

Comment

Here is another post about it. - Has anyone out there tried Histotripsy for tumors in...

https://connect.mayoclinic.org/comment/1192134/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

Comment

Thank you for your response and treatment info. It seems a good thing that you have...

https://connect.mayoclinic.org/comment/814505/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

They did not do a CA-19 test after surgery. And when I went to see my...

https://connect.mayoclinic.org/comment/1227405/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 7:09am

Comment

That is great that you had good results with Y90 and you toldetsted well. My husband...

https://connect.mayoclinic.org/comment/1338056/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29 6:44pm

Comment

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

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