Neuroendocrine Tumors (NETs) Support Group

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Comment

I went on to Ocreotide The first 3 injections I had side effects that weren’t so...

https://connect.mayoclinic.org/comment/868253/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

Comment

I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...

https://connect.mayoclinic.org/comment/1157998/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16 10:50am

Comment

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year...

https://connect.mayoclinic.org/comment/927801/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2023

Comment

Yes the oncologist sent me to palliative care but I really hate pain pills. They just...

https://connect.mayoclinic.org/comment/718894/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 19, 2022

Comment

Hi @harley4650 Deciding on PRRT, or any type of chemotherapy, is a big decision. Getting more...

https://connect.mayoclinic.org/comment/753432/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

Comment

Day 4 update - as she transitioned from ice chips to Italian ice and Apple juice,...

https://connect.mayoclinic.org/comment/821091/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Comment

Hi Joni, Hope you were able to get more of your questions answered during your zoom...

https://connect.mayoclinic.org/comment/670199/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2022

Comment

Hello @avawein I know you were scheduled for liver surgery on 10/21. I hope that all...

https://connect.mayoclinic.org/comment/647730/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2021

Comment

I have a NET but what’s a pNET? I have liver metastasis too. Could you tell...

https://connect.mayoclinic.org/comment/1071566/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 10:25am

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